National Marfan Foundation

Industry: Non-profit organization

Description

The Marfan Foundation is a non-profit organization in the United States established to raise awareness and promote research on treatment of Marfan syndrome and related disorders. Founder: Priscilla Ciccariello Founded: 1981 Area served: United States of America Location: Port Washington

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National Marfan Foundation Employees

Employee
Years
Job
Industry
Emily P. Wheeler Emily P. Wheeler San Francisco Bay Area Details
Emily P. Wheeler's National Marfan Foundation Experience 2005 - 2008
Job Jewelry Designer
Industry Apparel & Fashion
Experience
Emily P. Wheeler, LLC   April 2014 - Present
Vulume   February 2013 - March 2014
Rearden Commerce  October 2011 - October 2012
San Francisco SPCA  March 2011 - August 2011
Edelman  July 2008 - February 2011
Liz Claiborne  June 2008 - August 2008
National Marfan Foundation   2005 - 2008
IMG  1998 - 2001

Skills
Public Relations, Strategic Communications, Press Releases, Media Relations, Strategy, Marketing, Editorial, Social Media

Education
Menlo College   2004 — 2008
BA, Marketing Communication

Jonathan D. Martin Jonathan D. Martin Greater New York City Area Details
Jonathan D. Martin's National Marfan Foundation Experience January 2001 - February 2013
Job National Director of Programs at American Liver Foundation
Industry Nonprofit Organization Management
Experience
American Liver Foundation  March 2014 - Present
Digital Communications  April 2008 - February 2014
National Marfan Foundation   January 2001 - February 2013
Hofstra University  2003 - 2006
Long Island Association for AIDS Care  September 1999 - October 2000
Lane County (Oregon) Public Health Department   September 1998 - May 1999
Boulder County AIDS Project  1996 - 1998
Boulder County (Colorado) Health Department   1995 - 1998
University of Colorado  1995 - 1996

Skills
Social Media, Training Delivery, Teaching Experience, Non-profits, Community Outreach, Strategic Planning, Fundraising, Program Development, Curriculum Development, Public Speaking, Curriculum Design, Grant Writing, Coaching, Volunteer Management, Teaching, Leadership, Event Planning, Public Relations, Program Evaluation, Newsletters, Budgets, Nonprofits, Healthcare, Grants, Training, Program Management

Education
Hofstra University   2000 — 2003
MS, Health Education

University of Colorado at Boulder   1986 — 1995
BA, Communication, Linguistics

Marybeth Geronimo Marybeth Geronimo Saint Augustine, Florida Details
Marybeth Geronimo's National Marfan Foundation Experience 1998 - Present
Job Virtual Assistant Extraordinaire
Industry Staffing and Recruiting
Experience
Help Me MBG   January 2012 - Present
Eland Club of Elks Lodge 829   April 2013 - Present
Molly's Adopt A Sailor   January 2009 - Present
National Marfan Foundation   1998 - Present
Paramount Promotions   March 2006 - July 2011
Philips  September 1985 - October 2005

Skills
Microsoft Office, Travel Planning, Database Management, Office Administration, Infusion, Excel, PowerPoint, Word, Adobe Creative Suite, Lotus Notes, Outlook, Online Marketing, Email Marketing, Microsoft Word, Microsoft Excel, Customer Service, Event Planning, Coaching, Fundraising, Public Relations, Leadership, Nonprofits, Public Speaking, Volunteer Management, Data Entry, Social Media, Administration, Social Networking, Budgets, Payroll, Home Infusion, Event Management, Small Business, Office Management, Administrative..., Newsletters, Marketing, Blogging, Project Planning, Editing, Database Admin, Community Outreach, QuickBooks, Sales, Facebook, Strategic Planning, Social Media Marketing

Education
Sacred Heart University   1996 — 1999
Associate of Arts, Business Administration

Randie Alf Randie Alf Greater Milwaukee Area Details
Randie Alf's National Marfan Foundation Experience 2008 - 2010
Job Driven Store Manager with highend grocery and apparel retail background
Industry Supermarkets
Experience
dELiA*s  November 2014 - January 2015
The Fresh Market  June 2009 - May 2014
The Fresh Market  June 2009 - July 2012
National Marfan Foundation   2008 - 2010
Erdman Co   September 2008 - February 2009
Puma NA, Inc   June 2007 - September 2008
Wilson's Leather  August 2006 - May 2007
Victoria's  May 2004 - February 2005
Starbucks Coffee Company  2003 - 2005

Skills
Microsoft Office, Customer Relations, Customer Satisfaction, Fashion, Telephone Skills, Coaching, Payroll Processing, Windows, Trend, Customer Service, Visual Merchandising, Sales, Management, Retail

Education
Mount Mary University   2000 — 2004
bachelor, fashion design, business

Carroll College   2002 — 2003

Cindy Strupp Cindy Strupp Harrisburg, Pennsylvania Area Details
Cindy Strupp's National Marfan Foundation Experience 2006 - 2009
Job Owner, Revelation Photography
Industry Photography
Experience
Revelation Photography   September 2008 - Present
National Marfan Foundation   2006 - 2009

Skills
Photography, Event Planning, Fine Art, Photos, Leadership, Public Relations, Social Media Marketing, Social Media, Fundraising, Social Networking, Microsoft Office, Portraits, Editing, Event Management, Digital Photography, Marketing Communications, Blogging, Teaching, Fine Art Photography, PowerPoint, Wedding Photography, Newsletters, Public Speaking, Web Design, Art, Marketing Strategy, Photoshop, Commercial Photography, Email Marketing, Microsoft Word, Nonprofits, Microsoft Excel, Advertising, Portrait Photography, Marketing, Customer Service, Time Management, Graphic Design, Weddings, Online Marketing, Adobe Creative Suite, Event Photography, Volunteer Management, Facebook, Image Editing, Photojournalism, Senior Portraits, Image Manipulation, Small Business, Anniversaries

Education
Messiah College   1981 — 1985
BA, Art

Beth Best Beth Best Greater Boston Area Details
Beth Best's National Marfan Foundation Experience September 2006 - September 2007
Job Executive Director, Corporate Programs, Marketing Communications & Public Relations
Industry Marketing and Advertising
Experience
ConforMIS, Inc.   May 2015 - Present
ConforMIS, Inc.   June 2013 - Present
ConforMIS, Inc.   August 2011 - Present
Pine Street Inn  September 2009 - Present
Dana Farber Cancer Institute  January 2010 - August 2011
National Marfan Foundation   September 2006 - September 2007
Massachusetts General Hospital  September 2003 - 2005
Aspect Medical Systems  August 2001 - January 2003
Boston Scientific  1991 - 2001

Skills
Public Relations, Marketing Communications, Healthcare, Marketing, Product Development, Medical Devices, Executive Management, Digital Marketing, Fundraising, Corporate Branding, Product Launch, Corporate Communications, SEO, Lead Generation, Strategy, Product Marketing, Integrated Marketing

Education
Emory University   1985 — 1989
BA, Marketing

Dana Hall School

Heather Holmes Floyd, MSW, CPCC, ACC Heather Holmes Floyd, MSW, CPCC, ACC Greater Boston Area Details
Heather Holmes Floyd, MSW, CPCC, ACC's National Marfan Foundation Experience 2000 - 2010
Job Executive and Physician Coach and Consultant at Compass Coaching and Consulting
Industry Professional Training & Coaching
Experience
International Coach Federation New England Chapter   March 2014 - Present
Wellesley Partners, LTD   September 2010 - Present
Compass Coaching and Consulting   September 2009 - Present
National Marfan Foundation   2000 - 2010
Dana-Farber Cancer Institute  1987 - 1994

Skills
Coaching, Lifestyle Coaching, Fundraising, Leadership Development, Executive Coaching, Training, Management Consulting, Healthcare, Employee Relations, Career Counseling, Life Coaching, Strategic Planning, Personal Development, Organizational Design, Human Resources, Management, Public Speaking, Leadership

Education
Boston University   1982 — 1984
MSW (Masters in Social Work), Health Care

Bowdoin College   1978 — 1982
BA, Psychology/Gov't/Legal Studies

Bowdoin College

Benjamin Weisman Benjamin Weisman Greater New York City Area Details
Benjamin Weisman's National Marfan Foundation Experience June 2007 - Present
Job Fundraiser and Development Consultant
Industry Fund-Raising
Experience
National Marfan Foundation   June 2007 - Present
Rosie's Place  January 2012 - December 2014
Found in Translation, Inc.   November 2012 - August 2014
YNPN Boston  September 2008 - September 2013
Rosie's Place  April 2007 - January 2012
Susan Ulin Associates  2006 - 2007
NewBridge Services  January 2006 - May 2006
Drew Volunter Resource Center   May 2005 - May 2006
United Way of Morris County  2003 - 2005
New Repertory Theare   2000 - 2002

Skills
Fundraising, Non-profits, Community Outreach, Event Planning, Volunteer Management, Strategic Planning, Budget Process, Board Relations, Board of Director..., Program Management, Nonprofits, Grant Writing, Recruiting, Grants, Public Relations, Public Speaking, Philanthropy, Event Management, Program Development, Community Organizing, Leadership, Board Governance, Management, Strategy

Education
Boston University - School of Management   2008 — 2011
MBA, Public and Nonprofit Management

Boston University School of Professional Education   2006 — 2006
Professional Certificate in Fundraising

Drew University   2002 — 2006
Bachelor of Arts, Theatre Arts major and Political Science

Commonwealth   1997 — 2001

Brian Polk Brian Polk Greater New York City Area Details
Brian Polk's National Marfan Foundation Experience May 2010 - Present
Job at National Marfan Foundation
Industry Information Technology and Services
Experience
National Marfan Foundation   May 2010 - Present
Marks Paneth & Shron LLP  April 2009 - April 2010
FoodHandler  September 2000 - July 2008
soldout.com   March 1998 - June 2000
Lawrence, O'Donnell, Marcus & Co. LLC   October 1994 - March 1998
Metagram America Inc.   November 1987 - January 1994
Dreyfus  January 1987 - November 1987
CBS Broadcast International   August 1985 - December 1986
Coopers & Lybrand  June 1983 - August 1985
Long Island Lighting Company  April 1980 - June 1983

Skills
Microsoft SQL Server, System Administration, Integration, Databases, Project Management, Network Administration, Unix, Windows Server, Information Technology

Education
University of Miami   1976 — 1978
B.S., Mathematics/Statistics/Computer Sceience

Hofstra University   1974 — 1976
Mathematics

PS 135

Steve Marpman Steve Marpman Greater New York City Area Details
Steve Marpman's National Marfan Foundation Experience July 2002 - August 2009
Job Director of Clinical Support Services / Healthcare Administrator
Industry Hospital & Health Care
Experience
Lighthouse Guild International  November 2013 - Present
Parker Jewish Institute for Health Care and Rehabilitation  August 2006 - October 2013
National Marfan Foundation   July 2002 - August 2009
Visiting Nurse Service of New York  October 2003 - July 2006
YAI Network  October 2001 - August 2002
Queens Village - Hollis - Bellerose Volunteer Ambluance Corps   May 1993 - August 2001
Queens Village - Hollis - Bellerose Volunteer Ambulance Corps   November 1996 - December 2000
Transitional Services for New York, Inc.   August 1992 - June 2000
New York Hospital Queens  December 1989 - August 1992

Skills
Program Management, Program Development, Team Leadership, Team Building, Medical Social Work, Elder Care, Medicare, Medicaid, Crisis Intervention, Crisis Counseling, EHR, Clinical Research, Mental Health, Healthcare, Community Outreach, Policy, Volunteer Management, Social Services, Fundraising, Nonprofits, Home Care, Healthcare Management, Treatment, Mental Health Counseling, Managed Care, Therapists, Case Management, Strategic Planning, Training, EMR, Leadership, Long-term Care, Patient Safety, HIPAA, Healthcare Information..., Process Improvement, Management, Healthcare Industry

Education
University of Minnesota-Twin Cities   2012 — 2014
Master of Healthcare Administration

City University of New York-Hunter College   1999 — 2001
Master of Social Work, Administration, Casework

Queens College   1993 — 1995
Bachelor of Arts, Psychology, Sociology

Adelphi University   1989 — 1992
Psychology, Sociology

Bayside High School

Cara-lyn Capozzi Cara-lyn Capozzi Greater New York City Area Details
Cara-lyn Capozzi's National Marfan Foundation Experience October 2010 - April 2014
Job Groups SpecialistService at The Mark Travel Corporation
Industry Hospitality
Experience
The Mark Travel Corporation  April 2014 - April 2015
National Marfan Foundation   October 2010 - April 2014
Hazell Nut Cafe At University of New Haven   February 2009 - December 2009
The Nielsen Company  May 2009 - August 2009
American Eagle Outfitters  November 2008 - May 2009

Skills
Event Planning, Fundraising, Nonprofits, Community Outreach, Customer Service, Social Media, Microsoft Office, Outlook, PowerPoint, Microsoft Word

Education
University of New Haven   2007 — 2010
Bachelor's Degree, Hospitality and Tourism Management

New York Institute of Technology-Old Westbury   2005 — 2007

Maggie Hogan Maggie Hogan Greater New York City Area Details
Maggie Hogan's National Marfan Foundation Experience 2007 - 2012
Job NonProfit Professional
Industry Nonprofit Organization Management
Experience
Various Non Profit organizations  2013 - Present
National Marfan Foundation   2007 - 2012
Asian Cultural Council  2002 - 2007
Indo-U.S. Subcommission on Education and Culture   1991 - 1996
Festival of Indonesia   1988 - 1991
College Board  1982 - 1986

Skills
Community Outreach, Event Management, Fundraising, Event Planning, Grant Writing, Grants, Program Development, Nonprofits, Public Relations, Social Media, Strategic Planning, Volunteer Management

Education
Baruch College   1996 — 1998
Master of Public Administration (M.P.A.), Non-Profit/Public/Organizational Management

New York University   1982 — 1984
Master of Arts (M.A.), Classical, Ancient Mediterranean and Near Eastern Studies and Archaeology

The University of New Mexico   1971 — 1973
Bachelor of Arts (B.A.), Cultural Anthropology

Kathryn Heim Kathryn Heim Greater Milwaukee Area Details
Kathryn Heim's National Marfan Foundation Experience 2005 - 2009
Job Freelance
Industry Health, Wellness and Fitness
Experience
Positive Perspectives   2009 - Present
National Marfan Foundation   2005 - 2009

Skills
Grant Writing, Strategic Planning, Research, Nonprofits, Program Development, Non-profits

Education
Newport University
PhD, Human Behavior

Dorothy Schweitzer Dorothy Schweitzer Greater New York City Area Details
Dorothy Schweitzer's National Marfan Foundation Experience May 2009 - August 2009
Job Administrative Assistant
Industry Financial Services
Experience
HedgeOp Compliance, LLC  March 2011 - January 2012
Boys & Girls Club  September 2009 - May 2010
Port Jewelers   May 2009 - December 2009
Youngs Farm   June 2005 - November 2009
National Marfan Foundation   May 2009 - August 2009

Skills
Excel, Word, PowerPoint, Microsoft Office, Quickbooks, Outlook, Customer Service, Data Entry, Research, Event Planning, Accounting, Writing, Non-profits, Editing, Billing, Spanish, Windows, Accounts Payable, Scheduling, Accounts Receivable, Teamwork

Education
College of the Holy Cross   2008 — 2010
BA, Psychology, Philosophy

Marymount Manhattan College   2006 — 2008
Psychology, Business Management

Leslie Krotman Leslie Krotman United States Details
Leslie Krotman's National Marfan Foundation Experience January 2010 - October 2010
Job Development Officer, Individual Giving at 92Y
Industry Fund-Raising
Experience
92nd Street Y  April 2015 - Present
NYU Steinhardt School of Culture, Education, and Human Development   September 2014 - April 2015
NYU Steinhardt School of Culture, Education, and Human Development   February 2013 - September 2014
International Rescue Committee  October 2011 - February 2013
International Rescue Committee  October 2010 - October 2011
National Marfan Foundation   January 2010 - October 2010
Special Events Unlimited, Inc.   October 2009 - January 2010
Leslie Crocker Snyder for Manhattan DA and David Yassky for NYC Comptroller   July 2009 - October 2009

Skills
Planned Giving, Major Gifts, Development, Fundraising, Grassroots Organizing, Annual Giving, Volunteer Management, Community Outreach, Community Organizing, Stewardship, Higher Education, Philanthropy, Nonprofits, Program Development

Education
State University of New York College at Geneseo
BA in Psychology, Political Science

Judy Gibaldi Judy Gibaldi Port Washington, New York Details
Judy Gibaldi's National Marfan Foundation Experience October 1995 - Present
Job Sr. VP Operations & Finance
Industry Nonprofit Organization Management
Experience
National Marfan Foundation   October 1995 - Present
Non-profit Seminars   2008 - Present
St. John's University   1998 - 2000

Education
Regis University   2010 — 2010
Graduate Certificate in Non-profit Management, Non-profit Leadership, 4.0

St. John's University   1975 — 1977
Master of Arts (MA), Mathematics and Computer Science

St. John's Univversity   1971 — 1975
Bachelor of Science (BS), Education, Summa Cum Laude

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