National Organization for Rare Disorders (NORD)
Industry: Non-profit organization
DescriptionThe National Organization for Rare Disorders is an American non-profit organization aiming to provide support for individuals with rare diseases by advocating and funding research, education, and networking among service providers. Founded: 1983 President and CEO: Peter Saltonstall
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National Organization for Rare Disorders (NORD) Employees
Employee
Years
Job
Industry
Heather Rebb Gueli Heather Rebb Gueli's National Organization for Rare Disorders (NORD) Experience August 2006 - December 2006
Job Client Services Consultant at Cartus
Industry Consumer Services
Experience
Cartus March 2015 - Present
Gotta Guy Management October 2010 - Present
Cartus April 2012 - March 2015
Cartus October 2010 - April 2012
The Kasey Group December 2006 - October 2010
The Kasey Group-William Raveis Real Estate December 2006 - October 2010
National Organization for Rare Disorders (NORD) August 2006 - December 2006
Skills
Real Estate, Social Media, Relocation, Management, Sellers, First Time Home Buyers, Short Sales, Landscaping, Real Estate Transactions, Condos, Single Family Homes, Buyer Representation, Foreclosures, Referrals, Investment Properties, Residential Homes, New Home Sales, Listings, Horticulture, Property Management, Corporate Relocation, Customer Satisfaction
Education
University of Rhode Island 2002 — 2006
BS in Communications, Communications and Writing
Cartus March 2015 - Present
Gotta Guy Management October 2010 - Present
Cartus April 2012 - March 2015
Cartus October 2010 - April 2012
The Kasey Group December 2006 - October 2010
The Kasey Group-William Raveis Real Estate December 2006 - October 2010
National Organization for Rare Disorders (NORD) August 2006 - December 2006
Skills
Real Estate, Social Media, Relocation, Management, Sellers, First Time Home Buyers, Short Sales, Landscaping, Real Estate Transactions, Condos, Single Family Homes, Buyer Representation, Foreclosures, Referrals, Investment Properties, Residential Homes, New Home Sales, Listings, Horticulture, Property Management, Corporate Relocation, Customer Satisfaction
Education
University of Rhode Island 2002 — 2006
BS in Communications, Communications and Writing
Ana Maria Vallarino Ana Maria Vallarino's National Organization for Rare Disorders (NORD) Experience September 2010 - May 2011
Job Associate Director of Advancement at French American International School San Francisco
Industry Nonprofit Organization Management
Experience
French American International School- San Francisco October 2012 - Present
National Organization for Rare Disorders August 2011 - September 2012
National Urban Fellows, Inc. May 2010 - July 2011
National Organization for Rare Disorders (NORD) September 2010 - May 2011
Hispanics in Philanthropy August 2006 - April 2010
Toberman Settlement House January 2006 - July 2006
Nasu-Kaijo August 2004 - August 2005
Skills
Non-profits, Philanthropy, Program Evaluation, Fundraising, Community Outreach, Program Development, Grants, Grant Writing, Program Management, Public Policy, Policy, Volunteer Management, Community Organizing, Coalitions, Organizational..., Capacity Building, Non-profit..., Public Administration, Leadership Development, Teaching, Strategic Communications, Event Planning, Youth Development, Workshop Facilitation, Proposal Writing, Economic Development, Research, Board Development, Nonprofits, Grassroots Organizing, Leadership, Project Management, Community Development, Public Speaking, Policy Analysis, Social Entrepreneurship, Politics, International..., Political Campaigns, Strategy, Government, Social Justice, Public Relations, Legislative Relations, Annual Giving, Stewardship, Event Management, Editing, Community Engagement, Media Relations
Education
Baruch College, City University of New York (CUNY) 2010 — 2011
MPA, Public Administration
Occidental College 2000 — 2004
BA, Sociology; Spanish minor
Universidad de Granada 2001 — 2001
Palos Verdes Peninsula High School 1996 — 2000
French American International School- San Francisco October 2012 - Present
National Organization for Rare Disorders August 2011 - September 2012
National Urban Fellows, Inc. May 2010 - July 2011
National Organization for Rare Disorders (NORD) September 2010 - May 2011
Hispanics in Philanthropy August 2006 - April 2010
Toberman Settlement House January 2006 - July 2006
Nasu-Kaijo August 2004 - August 2005
Skills
Non-profits, Philanthropy, Program Evaluation, Fundraising, Community Outreach, Program Development, Grants, Grant Writing, Program Management, Public Policy, Policy, Volunteer Management, Community Organizing, Coalitions, Organizational..., Capacity Building, Non-profit..., Public Administration, Leadership Development, Teaching, Strategic Communications, Event Planning, Youth Development, Workshop Facilitation, Proposal Writing, Economic Development, Research, Board Development, Nonprofits, Grassroots Organizing, Leadership, Project Management, Community Development, Public Speaking, Policy Analysis, Social Entrepreneurship, Politics, International..., Political Campaigns, Strategy, Government, Social Justice, Public Relations, Legislative Relations, Annual Giving, Stewardship, Event Management, Editing, Community Engagement, Media Relations
Education
Baruch College, City University of New York (CUNY) 2010 — 2011
MPA, Public Administration
Occidental College 2000 — 2004
BA, Sociology; Spanish minor
Universidad de Granada 2001 — 2001
Palos Verdes Peninsula High School 1996 — 2000
Abbey Meyers Abbey Meyers's National Organization for Rare Disorders (NORD) Experience 2013 - Present
Job President at ASM Consulting; President Emeritus, National Organization for Rare Disorders (NORD)
Industry Nonprofit Organization Management
Experience
National Organization for Rare Disorders (NORD) 2013 - Present
ASM Consulting January 2010 - Present
National Organization for Rare Disorders (NORD) 1985 - 2008
National Organization for Rare Disorders (NORD) 1985 - 2008
National Organization for Rare Disorders, Inc. 1985 - 2008
Skills
FDA, Research, Non-profits, Biotechnology, Pharmaceuticals, Life Sciences, Pharmaceutical Industry, Drug Development, Lifesciences, Clinical Research, Healthcare, Strategy, Nonprofits, Public Health, Grant Writing, Fundraising, Program Development, Commercialization, Public Policy, Program Management, Policy, Strategic Planning, Community Outreach, Strategic Communications, Philanthropy, Volunteer Management, Public Relations, Program Evaluation, Public Speaking, Leadership, Grants
Education
Alfred University
Ph.D., Honorary, Doctor of Humane Letters
NYC Community College
AAS, advertising design
National Organization for Rare Disorders (NORD) 2013 - Present
ASM Consulting January 2010 - Present
National Organization for Rare Disorders (NORD) 1985 - 2008
National Organization for Rare Disorders (NORD) 1985 - 2008
National Organization for Rare Disorders, Inc. 1985 - 2008
Skills
FDA, Research, Non-profits, Biotechnology, Pharmaceuticals, Life Sciences, Pharmaceutical Industry, Drug Development, Lifesciences, Clinical Research, Healthcare, Strategy, Nonprofits, Public Health, Grant Writing, Fundraising, Program Development, Commercialization, Public Policy, Program Management, Policy, Strategic Planning, Community Outreach, Strategic Communications, Philanthropy, Volunteer Management, Public Relations, Program Evaluation, Public Speaking, Leadership, Grants
Education
Alfred University
Ph.D., Honorary, Doctor of Humane Letters
NYC Community College
AAS, advertising design
Maria Hardin Maria Hardin's National Organization for Rare Disorders (NORD) Experience 1987 - 2010
Job Senior Advisor at JF Campbell Consultants LLC
Industry Nonprofit Organization Management
Experience
JF Campbell Consultants LLC March 2011 - Present
National Organization for Rare Disorders (NORD) 1987 - 2010
Skills
Non-profits, Program Development, Biotechnology, Grant Writing, Strategic Planning, Grants, Fundraising, Public Speaking, Clinical Research, Nonprofits, Program Management, Healthcare, Public Health, Management Consulting, Lifesciences, Marketing, Public Policy, Pharmaceutical Industry, Health Policy, Community Outreach, Policy, Strategic Communications, Leadership Development, Program Evaluation, Organizational..., Workshop Facilitation, Policy Analysis, Philanthropy, Community Development, Infectious Diseases, Board Development, Coalitions, Public Affairs, Non-profit..., Volunteer Management, Legislative Relations, Grassroots Organizing, Proposal Writing, Government, Oncology, Community Organizing, Managed Care, Message Development, Speech Writing, Political Campaigns, International..., Legislation, Neurology, International Relations, Politics
Education
Southern Connecticut State University 1983 — 1985
Early Childhood Special Education
Rollins College 1972 — 1977
BA, Special Education
Mount St Joseph Academy 1958 — 1962
JF Campbell Consultants LLC March 2011 - Present
National Organization for Rare Disorders (NORD) 1987 - 2010
Skills
Non-profits, Program Development, Biotechnology, Grant Writing, Strategic Planning, Grants, Fundraising, Public Speaking, Clinical Research, Nonprofits, Program Management, Healthcare, Public Health, Management Consulting, Lifesciences, Marketing, Public Policy, Pharmaceutical Industry, Health Policy, Community Outreach, Policy, Strategic Communications, Leadership Development, Program Evaluation, Organizational..., Workshop Facilitation, Policy Analysis, Philanthropy, Community Development, Infectious Diseases, Board Development, Coalitions, Public Affairs, Non-profit..., Volunteer Management, Legislative Relations, Grassroots Organizing, Proposal Writing, Government, Oncology, Community Organizing, Managed Care, Message Development, Speech Writing, Political Campaigns, International..., Legislation, Neurology, International Relations, Politics
Education
Southern Connecticut State University 1983 — 1985
Early Childhood Special Education
Rollins College 1972 — 1977
BA, Special Education
Mount St Joseph Academy 1958 — 1962
Lisa Phelps Lisa Phelps's National Organization for Rare Disorders (NORD) Experience September 2011 - June 2013
Job Director of Marketing & Community Relations at National Organization for Rare Disorders
Industry Nonprofit Organization Management
Experience
National Organization for Rare Disorders January 2015 - Present
National Organization for Rare Disorders June 2013 - December 2014
HHS/ASPR/National Biodefense Science Board January 2013 - June 2013
National Organization for Rare Disorders (NORD) September 2011 - June 2013
Luboja & Thau, LLP July 2010 - August 2011
New York City Council February 2009 - June 2009
Skills
Branding, Marketing, Marketing Strategy, Marketing Communications, Social Media Marketing, Patient Advocacy, Policy, Strategic Planning, Policy Analysis, Project Management, Strategy, Grant Writing, Policy Writing, Epidemiology, Volunteer Management, Rare Diseases, Research, Legal Research Skills, Planning & Execution of..., Homeland Security, Public Speaking, Nonprofits, Stata Programming and..., Biodefense, Fundraising, Leadership
Education
The George Washington University 2011 — 2013
MPH, Health Policy
City University of New York-Baruch College 2008 — 2010
B.A., Political Science, with a dual minor of Law & Policy and Sociology.
National Organization for Rare Disorders January 2015 - Present
National Organization for Rare Disorders June 2013 - December 2014
HHS/ASPR/National Biodefense Science Board January 2013 - June 2013
National Organization for Rare Disorders (NORD) September 2011 - June 2013
Luboja & Thau, LLP July 2010 - August 2011
New York City Council February 2009 - June 2009
Skills
Branding, Marketing, Marketing Strategy, Marketing Communications, Social Media Marketing, Patient Advocacy, Policy, Strategic Planning, Policy Analysis, Project Management, Strategy, Grant Writing, Policy Writing, Epidemiology, Volunteer Management, Rare Diseases, Research, Legal Research Skills, Planning & Execution of..., Homeland Security, Public Speaking, Nonprofits, Stata Programming and..., Biodefense, Fundraising, Leadership
Education
The George Washington University 2011 — 2013
MPH, Health Policy
City University of New York-Baruch College 2008 — 2010
B.A., Political Science, with a dual minor of Law & Policy and Sociology.
Jean Campbell Jean Campbell's National Organization for Rare Disorders (NORD) Experience June 1992 - April 2010
Job Principal at JF Campbell Consultants LLC
Industry Nonprofit Organization Management
Experience
JF Campbell Consultants LLC May 2010 - Present
Professional Patient Advocates in Life Sciences (PPALS) December 2014 - Present
SmithSolve January 2011 - Present
National Organization for Rare Disorders (NORD) June 1992 - April 2010
Skills
Non Profit Governance..., Patient Advocacy, Patient Assistance..., Relationship Building, Understanding of Orphan..., Organizational..., Professional Mentoring, Rare Disease Advocate, Fundraising, Public Speaking, Strategic Planning, Grant Writing, Rare, Rare Diseases, Research, Strategy, Business Networking, Program Management, Healthcare, Public Health, Community Development, Entrepreneurship, Nonprofits, Building Relationships, Biotechnology, Marketing Communications, Policy, Grants, Program Development, Strategic Communications, Government, Board Development, Community Outreach, Philanthropy, Volunteer Management, Coalitions, Leadership Development, Annual Giving, Planned Giving, Stewardship, Proposal Writing, Grassroots Organizing, Non-profit..., Non-profit Board..., Board Relations, Prospect Research, Resource Development, Fundraisers, Media Relations
Education
Columbia University - Columbia Business School 2010 — 2010
Institute for Non Profit Management
City University of New York-Hunter College 1969 — 1973
Bachelor of Arts (B.A.), History
Stella Maris High School
St Vincent Ferrer, Brooklyn
JF Campbell Consultants LLC May 2010 - Present
Professional Patient Advocates in Life Sciences (PPALS) December 2014 - Present
SmithSolve January 2011 - Present
National Organization for Rare Disorders (NORD) June 1992 - April 2010
Skills
Non Profit Governance..., Patient Advocacy, Patient Assistance..., Relationship Building, Understanding of Orphan..., Organizational..., Professional Mentoring, Rare Disease Advocate, Fundraising, Public Speaking, Strategic Planning, Grant Writing, Rare, Rare Diseases, Research, Strategy, Business Networking, Program Management, Healthcare, Public Health, Community Development, Entrepreneurship, Nonprofits, Building Relationships, Biotechnology, Marketing Communications, Policy, Grants, Program Development, Strategic Communications, Government, Board Development, Community Outreach, Philanthropy, Volunteer Management, Coalitions, Leadership Development, Annual Giving, Planned Giving, Stewardship, Proposal Writing, Grassroots Organizing, Non-profit..., Non-profit Board..., Board Relations, Prospect Research, Resource Development, Fundraisers, Media Relations
Education
Columbia University - Columbia Business School 2010 — 2010
Institute for Non Profit Management
City University of New York-Hunter College 1969 — 1973
Bachelor of Arts (B.A.), History
Stella Maris High School
St Vincent Ferrer, Brooklyn
Mary Jean Sawey, PhD Mary Jean Sawey, PhD's National Organization for Rare Disorders (NORD) Experience 2000 - Present
Job Group Medical Director at ICC LOWE TRIO
Industry Pharmaceuticals
Experience
ICC LOWE TRIO July 2012 - Present
National Organization for Rare Disorders (NORD) 2000 - Present
ICC Lowe February 2011 - August 2012
ICC (Integrated Communications Corp) October 2004 - February 2011
Integrated Communications October 2003 - October 2004
Integrated Communications October 2002 - October 2003
Temple University School of Medicine March 1996 - October 2002
University of Pennsylvania School of Medicine March 1989 - March 1996
Skills
Oncology, Hypertension, Medical Education, Cancer, Publication Planning, Healthcare, Pharmaceuticals, Cardiology, Medical Writing, Asthma, Research, Teaching, Molecular Biology, Life Sciences, Allergy, Pharmaceutical Industry
Education
Harvard University School of Public Health 1987 — 1989
Post-Doctoral Fellow, Cancer Biology
NYU 1983 — 1987
Doctor of Philosophy (PhD), Biomedical Sciences (With Distinction)
SUNY Stony Brook 1980 — 1983
MS, Pharmacology
Rutgers, The State University of New Jersey-New Brunswick 1973 — 1973
BA, Microbiology
ICC LOWE TRIO July 2012 - Present
National Organization for Rare Disorders (NORD) 2000 - Present
ICC Lowe February 2011 - August 2012
ICC (Integrated Communications Corp) October 2004 - February 2011
Integrated Communications October 2003 - October 2004
Integrated Communications October 2002 - October 2003
Temple University School of Medicine March 1996 - October 2002
University of Pennsylvania School of Medicine March 1989 - March 1996
Skills
Oncology, Hypertension, Medical Education, Cancer, Publication Planning, Healthcare, Pharmaceuticals, Cardiology, Medical Writing, Asthma, Research, Teaching, Molecular Biology, Life Sciences, Allergy, Pharmaceutical Industry
Education
Harvard University School of Public Health 1987 — 1989
Post-Doctoral Fellow, Cancer Biology
NYU 1983 — 1987
Doctor of Philosophy (PhD), Biomedical Sciences (With Distinction)
SUNY Stony Brook 1980 — 1983
MS, Pharmacology
Rutgers, The State University of New Jersey-New Brunswick 1973 — 1973
BA, Microbiology
Joy (Bartnett) Leffler's National Organization for Rare Disorders (NORD) Experience May 1991 - August 1999
Job Founder and President at MedEdInfo
Industry Education Management
Experience
MedEdInfo February 2014 - Present
CME Outfitters, LLC February 2011 - February 2014
Movement Disorders Education Fund, Inc. (WE MOVE) August 1998 - February 2011
MedEdInfo June 1989 - December 2010
National Organization for Rare Disorders (NORD) May 1991 - August 1999
Skills
CMS Design, Biomedical Informatics, Outcomes Research, Medical Education, CME, Healthcare, Accreditation, Strategic Planning, Editing, Newsletters, Medical Writing, Medicine, Adult Education, Patient Outcomes, Program Development, Informatics, Copy Editing, Neurology, Neuroscience, Medical Research, CMS, Content Development, E-Learning, Physicians, Instructional Design, Grant Writing, Publications, Educational Research, Educational Program..., Advisory Boards, Taxonomy
Education
The College of New Rochelle
BS, Pre-med (Biology)
MedEdInfo February 2014 - Present
CME Outfitters, LLC February 2011 - February 2014
Movement Disorders Education Fund, Inc. (WE MOVE) August 1998 - February 2011
MedEdInfo June 1989 - December 2010
National Organization for Rare Disorders (NORD) May 1991 - August 1999
Skills
CMS Design, Biomedical Informatics, Outcomes Research, Medical Education, CME, Healthcare, Accreditation, Strategic Planning, Editing, Newsletters, Medical Writing, Medicine, Adult Education, Patient Outcomes, Program Development, Informatics, Copy Editing, Neurology, Neuroscience, Medical Research, CMS, Content Development, E-Learning, Physicians, Instructional Design, Grant Writing, Publications, Educational Research, Educational Program..., Advisory Boards, Taxonomy
Education
The College of New Rochelle
BS, Pre-med (Biology)
Aabha Khemani's National Organization for Rare Disorders (NORD) Experience June 2011 - August 2011
Job Competitive Intelligence at Amgen
Industry Biotechnology
Experience
Amgen April 2013 - Present
Celprogen, Inc October 2012 - April 2013
Biocision, LLC September 2012 - October 2012
Siegal Consulting April 2012 - October 2012
Amylin Pharmaceuticals August 2011 - May 2012
National Organization for Rare Disorders (NORD) June 2011 - August 2011
Keck Graduate Institute October 2010 - June 2011
Bharat Petroleum Corporation Limited August 2009 - April 2010
Skills
Data Analysis, Marketing Strategy, SEO, Market Research, Database Management, Supply Chain Management, Portfolio Management, Life Sciences, Inventory Management, Financial Analysis, Cost Analysis, Valuation, Market Analysis, Launch Of New Products, Marketing Communications, Market Intelligence, Interactive Marketing, Market Access, Pricing, Pharmaceutical Industry, Lifesciences, Product Launch, Competitive Analysis, Analysis, Biotechnology, Strategy, Oncology, Biopharmaceuticals, Commercialization, Infectious Diseases, Biochemistry, Clinical Trials, Database Admin, Immunology, Microbiology, FDA, Bioinformatics, Cost Benefit, Laboratory, Medical Devices, Genetics, Analytics, Cell Culture, Competitive Intelligence, Technology Transfer, Purification
Education
San Diego State University-California State University 2014 — 2015
Masters Degree, Computer Science
Keck Graduate Institute 2010 — 2012
Master of Bioscience, Business
University of Mumbai 2006 — 2010
Bachelor, Biotechnology
World Intellectual Property Organization (WIPO) 2008 — 2008
General Intellectual Property Rights
Amgen April 2013 - Present
Celprogen, Inc October 2012 - April 2013
Biocision, LLC September 2012 - October 2012
Siegal Consulting April 2012 - October 2012
Amylin Pharmaceuticals August 2011 - May 2012
National Organization for Rare Disorders (NORD) June 2011 - August 2011
Keck Graduate Institute October 2010 - June 2011
Bharat Petroleum Corporation Limited August 2009 - April 2010
Skills
Data Analysis, Marketing Strategy, SEO, Market Research, Database Management, Supply Chain Management, Portfolio Management, Life Sciences, Inventory Management, Financial Analysis, Cost Analysis, Valuation, Market Analysis, Launch Of New Products, Marketing Communications, Market Intelligence, Interactive Marketing, Market Access, Pricing, Pharmaceutical Industry, Lifesciences, Product Launch, Competitive Analysis, Analysis, Biotechnology, Strategy, Oncology, Biopharmaceuticals, Commercialization, Infectious Diseases, Biochemistry, Clinical Trials, Database Admin, Immunology, Microbiology, FDA, Bioinformatics, Cost Benefit, Laboratory, Medical Devices, Genetics, Analytics, Cell Culture, Competitive Intelligence, Technology Transfer, Purification
Education
San Diego State University-California State University 2014 — 2015
Masters Degree, Computer Science
Keck Graduate Institute 2010 — 2012
Master of Bioscience, Business
University of Mumbai 2006 — 2010
Bachelor, Biotechnology
World Intellectual Property Organization (WIPO) 2008 — 2008
General Intellectual Property Rights
Paige VerHeul's National Organization for Rare Disorders (NORD) Experience June 2007 - August 2010
Job Hospital & Health Care Professional
Industry Hospital & Health Care
Experience
Georgetown University Hospital October 2011 - September 2012
Washington Radiology Associates January 2011 - May 2011
National Organization for Rare Disorders (NORD) June 2007 - August 2010
Education
George Mason University 2007 — 2011
BS, Health Management/Administration
Danbury High School
Georgetown University Hospital October 2011 - September 2012
Washington Radiology Associates January 2011 - May 2011
National Organization for Rare Disorders (NORD) June 2007 - August 2010
Education
George Mason University 2007 — 2011
BS, Health Management/Administration
Danbury High School
American Heart Association
Big Brothers Big Sisters
National MS Society
Cystic Fibrosis Foundation
Sesame Workshop
Harlem Children's Zone
Fund for the Public Interest
Susan G. Komen for the Cure