National Organization for Rare Disorders
Industry: Non-profit organization
DescriptionThe National Organization for Rare Disorders is an American non-profit organization aiming to provide support for individuals with rare diseases by advocating and funding research, education, and networking among service providers. Chief strategy officer: Pamela Gavin
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National Organization for Rare Disorders Employees
Employee
Years
Job
Industry
J. Russell Teagarden J. Russell Teagarden's National Organization for Rare Disorders Experience March 2013 - November 2014
Job
Industry Hospital & Health Care
Experience
Here and There November 2014 - Present
National Organization for Rare Disorders March 2013 - November 2014
Medco Health Solutions, Inc January 2011 - September 2012
Medco July 1995 - December 2010
Medco July 1993 - July 1995
MedEd Healthcare Group, Ltd September 1991 - July 1993
Saint Joseph Hospital February 1987 - September 1991
Baxter Healthcare June 1985 - February 1987
Saint Joseph Hospital October 1983 - May 1985
Northwestern Memorial Hospital July 1979 - October 1983
Skills
Managed Care, Pharmacy Benefit..., Clinical Research, Healthcare, Clinical Trials
Education
Drew University 2005 — 2008
Doctorate, Medical Humanities
Loyola University Chicago 1984 — 1988
Master of Arts, Research Methods
University of Illinois at Chicago 1974 — 1978
Bachelor of Science, Pharmacy
Here and There November 2014 - Present
National Organization for Rare Disorders March 2013 - November 2014
Medco Health Solutions, Inc January 2011 - September 2012
Medco July 1995 - December 2010
Medco July 1993 - July 1995
MedEd Healthcare Group, Ltd September 1991 - July 1993
Saint Joseph Hospital February 1987 - September 1991
Baxter Healthcare June 1985 - February 1987
Saint Joseph Hospital October 1983 - May 1985
Northwestern Memorial Hospital July 1979 - October 1983
Skills
Managed Care, Pharmacy Benefit..., Clinical Research, Healthcare, Clinical Trials
Education
Drew University 2005 — 2008
Doctorate, Medical Humanities
Loyola University Chicago 1984 — 1988
Master of Arts, Research Methods
University of Illinois at Chicago 1974 — 1978
Bachelor of Science, Pharmacy
Juan Luís Poll Juan Luís Poll's National Organization for Rare Disorders Experience September 2012 - May 2013
Job OST Enrichment Zone Tutor The New York Public Library
Industry Education Management
Experience
The New York Public Library September 2014 - Present
TASC Group September 2013 - May 2014
National Organization for Rare Disorders September 2012 - May 2013
MIAF 2008 - 2008
Skills
Fundraising, Politics, Research, Political Science, Grassroots Organizing, Community Organizing, Community Outreach, Public Speaking, Public Policy, Social Media, Political Campaigns, Non-profits, Policy Analysis, Grant Writing, Event Planning, Program Development, Community Development, Strategic Communications, Program Evaluation, Public Relations, Volunteer Management, Policy, Government, Proposal Writing, Social Justice, Public Health, Strategic Planning, Editing, Organizational..., International..., International Relations, Board Development, Human Rights, Community Engagement, Youth Development, Grants, Philanthropy, Economic Development, Qualitative Research, Coalitions, Policy Research, Workshop Facilitation, Nonprofits, Legislative Relations, Press Releases, Capacity Building, Media Relations, Political Communication, Public Administration, Spanish
Education
Baruch College School of Public Affairs 2012 — 2013
Master of Public Administration (M.P.A.), Public Administration
City University of New York City College
Bachelor of Arts (B.A.), Political Science and Government
The New York Public Library September 2014 - Present
TASC Group September 2013 - May 2014
National Organization for Rare Disorders September 2012 - May 2013
MIAF 2008 - 2008
Skills
Fundraising, Politics, Research, Political Science, Grassroots Organizing, Community Organizing, Community Outreach, Public Speaking, Public Policy, Social Media, Political Campaigns, Non-profits, Policy Analysis, Grant Writing, Event Planning, Program Development, Community Development, Strategic Communications, Program Evaluation, Public Relations, Volunteer Management, Policy, Government, Proposal Writing, Social Justice, Public Health, Strategic Planning, Editing, Organizational..., International..., International Relations, Board Development, Human Rights, Community Engagement, Youth Development, Grants, Philanthropy, Economic Development, Qualitative Research, Coalitions, Policy Research, Workshop Facilitation, Nonprofits, Legislative Relations, Press Releases, Capacity Building, Media Relations, Political Communication, Public Administration, Spanish
Education
Baruch College School of Public Affairs 2012 — 2013
Master of Public Administration (M.P.A.), Public Administration
City University of New York City College
Bachelor of Arts (B.A.), Political Science and Government
Carrie (Fantel) Lucas, CMP Carrie (Fantel) Lucas, CMP's National Organization for Rare Disorders Experience March 2014 - Present
Job Meeting Planner at National Organization for Rare Disorders
Industry Events Services
Experience
National Organization for Rare Disorders March 2014 - Present
Castle Hotel & Spa (formerly Castle on the Hudson) December 2010 - March 2014
Panera Bread Company August 2010 - December 2010
ISES Napa-Sonoma July 2009 - July 2010
Chimney Rock Winery August 2008 - July 2010
Dean & Deluca March 2006 - August 2008
Skills
Hospitality, Event Management, Food & Beverage, Catering, Hospitality Management, Meeting Planning, Menu Development, Event Planning, Hotels, Culinary Skills, Corporate Events, Hospitality Industry, Customer Service, Wedding Planning, Trade Shows, Public Relations, Wine, Restaurants, Food
Education
The Culinary Institute of America at Greystone 2005 — 2006
Certificate, Advanced Culinary Arts Program
University of New Hampshire 2000 — 2005
BS, Healthcare Management and Policy
National Organization for Rare Disorders March 2014 - Present
Castle Hotel & Spa (formerly Castle on the Hudson) December 2010 - March 2014
Panera Bread Company August 2010 - December 2010
ISES Napa-Sonoma July 2009 - July 2010
Chimney Rock Winery August 2008 - July 2010
Dean & Deluca March 2006 - August 2008
Skills
Hospitality, Event Management, Food & Beverage, Catering, Hospitality Management, Meeting Planning, Menu Development, Event Planning, Hotels, Culinary Skills, Corporate Events, Hospitality Industry, Customer Service, Wedding Planning, Trade Shows, Public Relations, Wine, Restaurants, Food
Education
The Culinary Institute of America at Greystone 2005 — 2006
Certificate, Advanced Culinary Arts Program
University of New Hampshire 2000 — 2005
BS, Healthcare Management and Policy
Danielle Kempe's National Organization for Rare Disorders Experience April 2015 - Present
Job Development Manager at National Organization for Rare Disorders
Industry Nonprofit Organization Management
Experience
National Organization for Rare Disorders April 2015 - Present
Northeast Bloggers Network November 2014 - Present
Boston Women Communicators January 2013 - September 2015
Cystic Fibrosis Foundation November 2012 - March 2015
YNPN Boston November 2011 - October 2013
National Multiple Sclerosis Society February 2011 - November 2012
Weight Watchers December 2008 - June 2011
Graham Communications December 2009 - February 2011
National Multiple Sclerosis Society November 2008 - December 2009
CHEN PR June 2007 - November 2008
Skills
Fundraising, Nonprofits, Event Management, Social Media, Non-profits, Event Planning, Leadership, Social Networking, Volunteer Management, Marketing, Facebook, Community Outreach, Grants, Team Leadership, Budgets, Blogging, Program Management, Public Speaking, Public Relations, Editing, Press Releases, Community Development, Strategy, Corporate Communications, Strategic Planning, Marketing Communications, Leadership Development, Research, Management, Strategic Communications, Staff Development, Media Relations, Newsletters, Philanthropy, Interviews, Non-profit Development, Special Events, Non-profit Marketing, Budgeting, Grant Writing, Non-profit..., Sponsorship Research, Stewardship, Social Media Marketing, Proposal Writing
Education
Emmanuel College 2002 — 2006
English Communications, English - Communications
Peabody Veterans Memorial High School
National Organization for Rare Disorders April 2015 - Present
Northeast Bloggers Network November 2014 - Present
Boston Women Communicators January 2013 - September 2015
Cystic Fibrosis Foundation November 2012 - March 2015
YNPN Boston November 2011 - October 2013
National Multiple Sclerosis Society February 2011 - November 2012
Weight Watchers December 2008 - June 2011
Graham Communications December 2009 - February 2011
National Multiple Sclerosis Society November 2008 - December 2009
CHEN PR June 2007 - November 2008
Skills
Fundraising, Nonprofits, Event Management, Social Media, Non-profits, Event Planning, Leadership, Social Networking, Volunteer Management, Marketing, Facebook, Community Outreach, Grants, Team Leadership, Budgets, Blogging, Program Management, Public Speaking, Public Relations, Editing, Press Releases, Community Development, Strategy, Corporate Communications, Strategic Planning, Marketing Communications, Leadership Development, Research, Management, Strategic Communications, Staff Development, Media Relations, Newsletters, Philanthropy, Interviews, Non-profit Development, Special Events, Non-profit Marketing, Budgeting, Grant Writing, Non-profit..., Sponsorship Research, Stewardship, Social Media Marketing, Proposal Writing
Education
Emmanuel College 2002 — 2006
English Communications, English - Communications
Peabody Veterans Memorial High School
Barbara Hollister Barbara Hollister's National Organization for Rare Disorders Experience January 2015 - Present
Job Educational Initiatives Coordinator
Industry Public Relations and Communications
Experience
National Organization for Rare Disorders January 2015 - Present
National Organization for Rare Disorders May 2014 - December 2014
Grand Canyon University April 2010 - May 2014
Brazilian Cultural Center January 2004 - January 2005
Mobil Oil Corporation January 1998 - March 2000
Mobil Oil Corporation March 1997 - January 1998
Mobil Foundation July 1996 - March 1997
Beneficial Management Corporation September 1993 - May 1996
Skills
Research, Editing, Copy Editing, Writing, Children, Cultural Diversity, Database Administration, English, Excel, Event Planning, HRIS, History, PowerPoint, Payroll, Accounts Payable, Human Relations, Word, WordPerfect, Benefits Administration, Team Building, Visio, Youth Development, Behavior Modification, Eating Disorders, Digital Media, Telecommunications, Teamwork, Catering, Travel Management, Business Correspondence, Child Development, Procurement, Microsoft Word, Microsoft Excel, Proofreading, Nonprofits, Wordperfect, Social Media, Public Relations, Marketing Copy, Marketing Communications, Social Media Blogging, Marketing
Education
Grand Canyon University 2010 — 2014
BA, Communications
Gibbs College 1992 — 1993
Business Administration
National Organization for Rare Disorders January 2015 - Present
National Organization for Rare Disorders May 2014 - December 2014
Grand Canyon University April 2010 - May 2014
Brazilian Cultural Center January 2004 - January 2005
Mobil Oil Corporation January 1998 - March 2000
Mobil Oil Corporation March 1997 - January 1998
Mobil Foundation July 1996 - March 1997
Beneficial Management Corporation September 1993 - May 1996
Skills
Research, Editing, Copy Editing, Writing, Children, Cultural Diversity, Database Administration, English, Excel, Event Planning, HRIS, History, PowerPoint, Payroll, Accounts Payable, Human Relations, Word, WordPerfect, Benefits Administration, Team Building, Visio, Youth Development, Behavior Modification, Eating Disorders, Digital Media, Telecommunications, Teamwork, Catering, Travel Management, Business Correspondence, Child Development, Procurement, Microsoft Word, Microsoft Excel, Proofreading, Nonprofits, Wordperfect, Social Media, Public Relations, Marketing Copy, Marketing Communications, Social Media Blogging, Marketing
Education
Grand Canyon University 2010 — 2014
BA, Communications
Gibbs College 1992 — 1993
Business Administration
Kira Dineen's National Organization for Rare Disorders Experience May 2015 - Present
Job Genetics Radio Host
Industry Online Media
Experience
My Gene Counsel, LLC April 2015 - Present
DNA Podcast August 2012 - Present
National Organization for Rare Disorders May 2015 - Present
Freelance 2013 - Present
Unlimited Signs Designs & Graphics, Inc. July 2014 - Present
Nightlock Podcast June 2011 - Present
Freelance June 2013 - Present
Redding Connecticut Park and Recreation July 2014 - Present
UConn Health July 2015 - August 2015
Dr. Rachel O’Neill’s Cytogenetics Laboratory January 2015 - May 2015
Skills
Social Media Marketing, Blogging, Facebook, Social Media, Social Networking, Marketing Communications, Online Marketing, Copywriting, Podcasting, Blogger, Journalism, Marketing, Creative Writing, Digital Media, Management, Online Advertising, Audio Editing, Twitter, Radio Broadcasting, Hootsuite, Ghostwriting, LinkedIn, Pinterest, Content Marketing, On-air Hosting, Genetics, Archery, Content MX, Butterfly Publisher, WordPress, Leadership, Typing, Radio Host
Education
University of Connecticut 2013 — 2017
Bachelor's degree, Diagnostic Genetic Sciences - Molecular Concentration, Junior
Brookfield High School
My Gene Counsel, LLC April 2015 - Present
DNA Podcast August 2012 - Present
National Organization for Rare Disorders May 2015 - Present
Freelance 2013 - Present
Unlimited Signs Designs & Graphics, Inc. July 2014 - Present
Nightlock Podcast June 2011 - Present
Freelance June 2013 - Present
Redding Connecticut Park and Recreation July 2014 - Present
UConn Health July 2015 - August 2015
Dr. Rachel O’Neill’s Cytogenetics Laboratory January 2015 - May 2015
Skills
Social Media Marketing, Blogging, Facebook, Social Media, Social Networking, Marketing Communications, Online Marketing, Copywriting, Podcasting, Blogger, Journalism, Marketing, Creative Writing, Digital Media, Management, Online Advertising, Audio Editing, Twitter, Radio Broadcasting, Hootsuite, Ghostwriting, LinkedIn, Pinterest, Content Marketing, On-air Hosting, Genetics, Archery, Content MX, Butterfly Publisher, WordPress, Leadership, Typing, Radio Host
Education
University of Connecticut 2013 — 2017
Bachelor's degree, Diagnostic Genetic Sciences - Molecular Concentration, Junior
Brookfield High School
Richard Head Richard Head's National Organization for Rare Disorders Experience June 2011 - August 2011
Job Clinical Research Assistant at Norton Healthcare
Industry Hospital & Health Care
Experience
Norton Healthcare March 2015 - Present
UPS Supply Chain Solutions October 2013 - March 2015
Clear Springs Team Masters Project August 2011 - May 2012
National Organization for Rare Disorders June 2011 - August 2011
KGI & QuantiScientifics,LLC August 2010 - April 2011
KGI & California Institute of Technology October 2010 - December 2010
Xavier University August 2009 - May 2010
Skills
Technology Transfer, Market Analysis, Regulatory Affairs, Competitive Analysis, Bioprocessing, Lifesciences, Pharmaceutical Industry, Cell Culture, PCR, Microbiology, Molecular Biology, Competitive Intelligence, Medical Devices, Market Research, Data Analysis, Genetics, Biotechnology, Valuation, Financial Modeling
Education
Keck Graduate Institute 2010 — 2012
Master of Bioscience, Bioprocessing and Business of Bioscience
Xavier University 2006 — 2010
Bachelors, Natural Sciences
Norton Healthcare March 2015 - Present
UPS Supply Chain Solutions October 2013 - March 2015
Clear Springs Team Masters Project August 2011 - May 2012
National Organization for Rare Disorders June 2011 - August 2011
KGI & QuantiScientifics,LLC August 2010 - April 2011
KGI & California Institute of Technology October 2010 - December 2010
Xavier University August 2009 - May 2010
Skills
Technology Transfer, Market Analysis, Regulatory Affairs, Competitive Analysis, Bioprocessing, Lifesciences, Pharmaceutical Industry, Cell Culture, PCR, Microbiology, Molecular Biology, Competitive Intelligence, Medical Devices, Market Research, Data Analysis, Genetics, Biotechnology, Valuation, Financial Modeling
Education
Keck Graduate Institute 2010 — 2012
Master of Bioscience, Bioprocessing and Business of Bioscience
Xavier University 2006 — 2010
Bachelors, Natural Sciences
Yvonne Durbin Yvonne Durbin's National Organization for Rare Disorders Experience March 2013 - April 2013
Job Compliance Professional Development Program at State Street
Industry Financial Services
Experience
State Street July 2015 - Present
U.S. Department of the Treasury May 2014 - August 2014
National Organization for Rare Disorders March 2013 - April 2013
US Embassy Berlin June 2012 - August 2012
Washington, DC Economic Partnership February 2012 - May 2012
Institute for European, Russian and Eurasian Studies February 2012 - May 2012
Stratec Molecular June 2011 - August 2011
Town of Ridgefield January 2011 - March 2011
Reinsurance Association of America June 2010 - December 2010
Town of Ridgefield 2007 - 2009
Skills
Microsoft Word, Microsoft Excel, Stata, SAS, Lexis, Facebook, Social Media, Public Speaking, Analytical Skills, Report Writing, Editing, International Relations, Research, Microsoft Office, Policy Analysis, International..., PowerPoint, Economics, Nonprofits, Community Outreach, Politics
Education
Tufts University - The Fletcher School of Law and Diplomacy 2013 — 2015
Master of Arts in Law and Diplomacy, Development Economics, International Finance and Banking
The George Washington University 2009 — 2012
Bachelor of Arts (BA), International Relations and Affairs, German
Humboldt-Universität zu Berlin 2011 — 2011
German Language and Literature
The University of Edinburgh 2011 — 2011
Economics
State Street July 2015 - Present
U.S. Department of the Treasury May 2014 - August 2014
National Organization for Rare Disorders March 2013 - April 2013
US Embassy Berlin June 2012 - August 2012
Washington, DC Economic Partnership February 2012 - May 2012
Institute for European, Russian and Eurasian Studies February 2012 - May 2012
Stratec Molecular June 2011 - August 2011
Town of Ridgefield January 2011 - March 2011
Reinsurance Association of America June 2010 - December 2010
Town of Ridgefield 2007 - 2009
Skills
Microsoft Word, Microsoft Excel, Stata, SAS, Lexis, Facebook, Social Media, Public Speaking, Analytical Skills, Report Writing, Editing, International Relations, Research, Microsoft Office, Policy Analysis, International..., PowerPoint, Economics, Nonprofits, Community Outreach, Politics
Education
Tufts University - The Fletcher School of Law and Diplomacy 2013 — 2015
Master of Arts in Law and Diplomacy, Development Economics, International Finance and Banking
The George Washington University 2009 — 2012
Bachelor of Arts (BA), International Relations and Affairs, German
Humboldt-Universität zu Berlin 2011 — 2011
German Language and Literature
The University of Edinburgh 2011 — 2011
Economics
Peter L. Saltonstall's National Organization for Rare Disorders Experience April 2008 - Present
Job President and CEO at National Organization for Rare Disorders
Industry Public Policy
Experience
National Organization for Rare Disorders April 2008 - Present
Strategic Business Initiatives (SBI) 2006 - 2008
Safe Care Systems, Inc 2001 - 2005
Harvard Risk Management Foundation 1998 - 2000
Saltonstall Partners 1995 - 1998
St. Elizabeth's Medical Center 1988 - 1995
Brigham and Women's Hospital 1984 - 1988
Tufts New England Medical Center 1979 - 1984
Yale University 1974 - 1979
Skills
Patient Advocacy, Healthcare Management, Healthcare, Executive Management, Start-ups, Medicaid, Personalized Medicine, Healthcare Information..., Strategic Planning, Philanthropy, Non-profits, Mergers, Healthcare IT, Hospitals, Government Relations, Non-profit Marketing, Entrepreneurship, Business Strategy, Nonprofits, Fundraising, Program Development, Policy, Pharmaceutical Industry, Rare Diseases, Strategic Communications, Public Speaking, Strategy, Marketing, Healthcare Consulting, Program Evaluation, Public Policy, Community Outreach, Infectious Diseases, Volunteer Management, Advisory Boards, Drug Development, Coalitions, Commercialization, Public Health, Translational Research, Cancer, Neurology, Grant Writing, Clinical Trials, Medical Writing, Health Policy, Life Sciences, Biotechnology, Clinical Research
Education
Babson College
Midwest institute
National Organization for Rare Disorders April 2008 - Present
Strategic Business Initiatives (SBI) 2006 - 2008
Safe Care Systems, Inc 2001 - 2005
Harvard Risk Management Foundation 1998 - 2000
Saltonstall Partners 1995 - 1998
St. Elizabeth's Medical Center 1988 - 1995
Brigham and Women's Hospital 1984 - 1988
Tufts New England Medical Center 1979 - 1984
Yale University 1974 - 1979
Skills
Patient Advocacy, Healthcare Management, Healthcare, Executive Management, Start-ups, Medicaid, Personalized Medicine, Healthcare Information..., Strategic Planning, Philanthropy, Non-profits, Mergers, Healthcare IT, Hospitals, Government Relations, Non-profit Marketing, Entrepreneurship, Business Strategy, Nonprofits, Fundraising, Program Development, Policy, Pharmaceutical Industry, Rare Diseases, Strategic Communications, Public Speaking, Strategy, Marketing, Healthcare Consulting, Program Evaluation, Public Policy, Community Outreach, Infectious Diseases, Volunteer Management, Advisory Boards, Drug Development, Coalitions, Commercialization, Public Health, Translational Research, Cancer, Neurology, Grant Writing, Clinical Trials, Medical Writing, Health Policy, Life Sciences, Biotechnology, Clinical Research
Education
Babson College
Midwest institute
Eddie Mann Eddie Mann's National Organization for Rare Disorders Experience May 2015 - July 2015
Job Asian Studies Major Coe College
Industry Nonprofit Organization Management
Experience
National Organization for Rare Disorders May 2015 - July 2015
Danbury Museum and Historical Society June 2014 - July 2014
Redding, CT May 2013 - September 2013
The Kennedy Center Inc. June 2008 - August 2008
Skills
Computer Science, Cataloging, Museum Collections, Japanese, Research, Writing, Inventory Accuracy, Time & Attendance
Education
Coe College 2014 — 2018
Bachelor's Degree, Asian Studies/Civilization
Purchase College, SUNY 2014 — 2014
Certificate of Completion, Social Media for Nonprofits
Joel Barlow High School
High School, College/University Preparatory and Advanced High School/Secondary Diploma Program
National Organization for Rare Disorders May 2015 - July 2015
Danbury Museum and Historical Society June 2014 - July 2014
Redding, CT May 2013 - September 2013
The Kennedy Center Inc. June 2008 - August 2008
Skills
Computer Science, Cataloging, Museum Collections, Japanese, Research, Writing, Inventory Accuracy, Time & Attendance
Education
Coe College 2014 — 2018
Bachelor's Degree, Asian Studies/Civilization
Purchase College, SUNY 2014 — 2014
Certificate of Completion, Social Media for Nonprofits
Joel Barlow High School
High School, College/University Preparatory and Advanced High School/Secondary Diploma Program
Kirtiman Weiss Kirtiman Weiss's National Organization for Rare Disorders Experience May 2012 - August 2012
Job Associate Software Developer at Gartner
Industry Internet
Experience
Gartner February 2015 - Present
Gartner April 2014 - Present
Self Employed Web Developer and Web Designer April 2010 - December 2013
Hasbro January 2013 - May 2013
NOAA 2012 - 2013
National Organization for Rare Disorders May 2012 - August 2012
RWU Web Development Club August 2010 - May 2012
ArtsWestchester May 2011 - August 2011
Skills
HTML + CSS, PHP, phpMyAdmin, JavaScript, MySQL, Database Design, Relational Databases, Database Development, Photoshop, Illustrator, Fireworks, Excel, CSS, HTML, Adobe Fireworks, Web Development, Microsoft Excel, Web Design, Bootstrap, Freemarker, PowerPoint, JSP, AngularJS, Databases, Public Speaking, WordPress, Social Media
Education
Roger Williams University 2009 — 2013
Bachelor of Science, Web Development, Marketing, Architecture, Graphic Design, Overall: 3.5/4, Major: 3.9/4
Gartner February 2015 - Present
Gartner April 2014 - Present
Self Employed Web Developer and Web Designer April 2010 - December 2013
Hasbro January 2013 - May 2013
NOAA 2012 - 2013
National Organization for Rare Disorders May 2012 - August 2012
RWU Web Development Club August 2010 - May 2012
ArtsWestchester May 2011 - August 2011
Skills
HTML + CSS, PHP, phpMyAdmin, JavaScript, MySQL, Database Design, Relational Databases, Database Development, Photoshop, Illustrator, Fireworks, Excel, CSS, HTML, Adobe Fireworks, Web Development, Microsoft Excel, Web Design, Bootstrap, Freemarker, PowerPoint, JSP, AngularJS, Databases, Public Speaking, WordPress, Social Media
Education
Roger Williams University 2009 — 2013
Bachelor of Science, Web Development, Marketing, Architecture, Graphic Design, Overall: 3.5/4, Major: 3.9/4
Aileen Tobin Aileen Tobin's National Organization for Rare Disorders Experience June 2012 - April 2015
Job Sales Associate at Thomson Reuters
Industry Financial Services
Experience
Thomson Reuters July 2015 - Present
University of Connecticut August 2014 - May 2015
National Organization for Rare Disorders June 2012 - April 2015
Skills
Social Media, Public Speaking, Photoshop, Microsoft Office, After Effects, Community Outreach, Leadership, Tax & Accounting, Marketing, Nonprofits, Market Research, Advertising, InDesign, Community Development, Email Marketing, Program Development, Critical Thinking, Outlook, Strategic Planning, Higher Education, Access, HTML
Education
The University of Connecticut 2011 — 2015
Bachelor's degree, Marketing, 3.9/4.0
Brookfield High School 2007 — 2011
University College Dublin
Thomson Reuters July 2015 - Present
University of Connecticut August 2014 - May 2015
National Organization for Rare Disorders June 2012 - April 2015
Skills
Social Media, Public Speaking, Photoshop, Microsoft Office, After Effects, Community Outreach, Leadership, Tax & Accounting, Marketing, Nonprofits, Market Research, Advertising, InDesign, Community Development, Email Marketing, Program Development, Critical Thinking, Outlook, Strategic Planning, Higher Education, Access, HTML
Education
The University of Connecticut 2011 — 2015
Bachelor's degree, Marketing, 3.9/4.0
Brookfield High School 2007 — 2011
University College Dublin
Sadaf Ahmad Sadaf Ahmad's National Organization for Rare Disorders Experience September 2007 - May 2008
Job Public Policy and Advocacy Manager at Alzheimer's Association® National Capital Area Chapter
Industry Public Policy
Experience
Alzheimer's Association® December 2014 - Present
Careers In Nonprofits September 2014 - October 2014
Caregiver Action Network August 2013 - May 2014
Institute for Social Policy and Understanding October 2013 - December 2013
Hemophilia Federation of America February 2013 - July 2013
Interfaith Youth Core February 2010 - March 2012
Illinois Center for Violence Prevention December 2008 - June 2009
National Organization for Rare Disorders September 2007 - May 2008
National Urban Fellows, Inc. 2007 - 2008
Field Foundation of Illinois June 2006 - September 2006
Skills
Community Outreach, Program Development, Policy Analysis, Public Health, Patient Advocacy, Public Policy, Community Organizing, Grants, Grant Writing, Non-profits, Social Justice, Nonprofits, Volunteer Management, Coalitions, Philanthropy, Civic Engagement, Grassroots Organizing, Program Evaluation, Health, Proposal Writing, Public Speaking, NGOs, Policy, Advocacy, Youth Development, Justice, Technical Assistance, Research, Workshop Facilitation, Event Planning, Editing, Non-profit..., Community Development, Human Rights, Leadership Development, International Relations, Social Change, Coalition Building, Activism, Youth Leadership, Volunteer Coordination, Diversity Training, Grant Management, Student Development, Urdu, Hindi, eTapestry, Relational Databases, Social Media, Facebook
Education
Baruch College, City University of New York (CUNY) 2007 — 2008
MPA, Public Administration
Loyola University Chicago 2006 — 2006
Certificate in Philanthropy & Nonprofit Sector
Williams College 1997 — 2002
BA, American Studies
Alzheimer's Association® December 2014 - Present
Careers In Nonprofits September 2014 - October 2014
Caregiver Action Network August 2013 - May 2014
Institute for Social Policy and Understanding October 2013 - December 2013
Hemophilia Federation of America February 2013 - July 2013
Interfaith Youth Core February 2010 - March 2012
Illinois Center for Violence Prevention December 2008 - June 2009
National Organization for Rare Disorders September 2007 - May 2008
National Urban Fellows, Inc. 2007 - 2008
Field Foundation of Illinois June 2006 - September 2006
Skills
Community Outreach, Program Development, Policy Analysis, Public Health, Patient Advocacy, Public Policy, Community Organizing, Grants, Grant Writing, Non-profits, Social Justice, Nonprofits, Volunteer Management, Coalitions, Philanthropy, Civic Engagement, Grassroots Organizing, Program Evaluation, Health, Proposal Writing, Public Speaking, NGOs, Policy, Advocacy, Youth Development, Justice, Technical Assistance, Research, Workshop Facilitation, Event Planning, Editing, Non-profit..., Community Development, Human Rights, Leadership Development, International Relations, Social Change, Coalition Building, Activism, Youth Leadership, Volunteer Coordination, Diversity Training, Grant Management, Student Development, Urdu, Hindi, eTapestry, Relational Databases, Social Media, Facebook
Education
Baruch College, City University of New York (CUNY) 2007 — 2008
MPA, Public Administration
Loyola University Chicago 2006 — 2006
Certificate in Philanthropy & Nonprofit Sector
Williams College 1997 — 2002
BA, American Studies
Casey J. Morris Casey J. Morris's National Organization for Rare Disorders Experience August 2013 - Present
Job Software Engineer at National Organization for Rare Disorders
Industry Information Technology and Services
Experience
National Organization for Rare Disorders August 2013 - Present
National Organization for Rare Disorders February 2012 - August 2013
National Organization for Rare Disorders December 2011 - February 2012
Dish Network April 2011 - December 2011
myGengo October 2010 - December 2011
Savings Bank of Danbury November 2010 - January 2011
Skills
Translation, Japanese, Spanish, Windows 7, Perl, Ubuntu, French, System Administration, Microsoft Word, C#, .NET, LINQ, ASP.NET MVC, Visual Studio, Entity Framework, WinForms, Microsoft SQL Server, SQL, Japanese culture, Windows Server, Unix Shell Scripting, Linux, Mac OS X, MediaWiki, Plone, WSUS, Active Directory, PostgreSQL, Powershell, ASP.NET, HTML, Emacs
Education
University of Massachusetts, Amherst 2006 — 2010
B.A., Japanese Language & Literature, Spanish, French & Francophone Studies, 3.9
北海道大学 2009 — 2010
Japanese Language and Culture Course of Study (Yearlong Japanese monolingual program)
New Fairfield High School
National Organization for Rare Disorders August 2013 - Present
National Organization for Rare Disorders February 2012 - August 2013
National Organization for Rare Disorders December 2011 - February 2012
Dish Network April 2011 - December 2011
myGengo October 2010 - December 2011
Savings Bank of Danbury November 2010 - January 2011
Skills
Translation, Japanese, Spanish, Windows 7, Perl, Ubuntu, French, System Administration, Microsoft Word, C#, .NET, LINQ, ASP.NET MVC, Visual Studio, Entity Framework, WinForms, Microsoft SQL Server, SQL, Japanese culture, Windows Server, Unix Shell Scripting, Linux, Mac OS X, MediaWiki, Plone, WSUS, Active Directory, PostgreSQL, Powershell, ASP.NET, HTML, Emacs
Education
University of Massachusetts, Amherst 2006 — 2010
B.A., Japanese Language & Literature, Spanish, French & Francophone Studies, 3.9
北海道大学 2009 — 2010
Japanese Language and Culture Course of Study (Yearlong Japanese monolingual program)
New Fairfield High School
Ana Maria Vallarino Ana Maria Vallarino's National Organization for Rare Disorders Experience August 2011 - September 2012
Job Associate Director of Advancement at French American International School San Francisco
Industry Nonprofit Organization Management
Experience
French American International School- San Francisco October 2012 - Present
National Organization for Rare Disorders August 2011 - September 2012
National Urban Fellows, Inc. May 2010 - July 2011
National Organization for Rare Disorders (NORD) September 2010 - May 2011
Hispanics in Philanthropy August 2006 - April 2010
Toberman Settlement House January 2006 - July 2006
Nasu-Kaijo August 2004 - August 2005
Skills
Non-profits, Philanthropy, Program Evaluation, Fundraising, Community Outreach, Program Development, Grants, Grant Writing, Program Management, Public Policy, Policy, Volunteer Management, Community Organizing, Coalitions, Organizational..., Capacity Building, Non-profit..., Public Administration, Leadership Development, Teaching, Strategic Communications, Event Planning, Youth Development, Workshop Facilitation, Proposal Writing, Economic Development, Research, Board Development, Nonprofits, Grassroots Organizing, Leadership, Project Management, Community Development, Public Speaking, Policy Analysis, Social Entrepreneurship, Politics, International..., Political Campaigns, Strategy, Government, Social Justice, Public Relations, Legislative Relations, Annual Giving, Stewardship, Event Management, Editing, Community Engagement, Media Relations
Education
Baruch College, City University of New York (CUNY) 2010 — 2011
MPA, Public Administration
Occidental College 2000 — 2004
BA, Sociology; Spanish minor
Universidad de Granada 2001 — 2001
Palos Verdes Peninsula High School 1996 — 2000
French American International School- San Francisco October 2012 - Present
National Organization for Rare Disorders August 2011 - September 2012
National Urban Fellows, Inc. May 2010 - July 2011
National Organization for Rare Disorders (NORD) September 2010 - May 2011
Hispanics in Philanthropy August 2006 - April 2010
Toberman Settlement House January 2006 - July 2006
Nasu-Kaijo August 2004 - August 2005
Skills
Non-profits, Philanthropy, Program Evaluation, Fundraising, Community Outreach, Program Development, Grants, Grant Writing, Program Management, Public Policy, Policy, Volunteer Management, Community Organizing, Coalitions, Organizational..., Capacity Building, Non-profit..., Public Administration, Leadership Development, Teaching, Strategic Communications, Event Planning, Youth Development, Workshop Facilitation, Proposal Writing, Economic Development, Research, Board Development, Nonprofits, Grassroots Organizing, Leadership, Project Management, Community Development, Public Speaking, Policy Analysis, Social Entrepreneurship, Politics, International..., Political Campaigns, Strategy, Government, Social Justice, Public Relations, Legislative Relations, Annual Giving, Stewardship, Event Management, Editing, Community Engagement, Media Relations
Education
Baruch College, City University of New York (CUNY) 2010 — 2011
MPA, Public Administration
Occidental College 2000 — 2004
BA, Sociology; Spanish minor
Universidad de Granada 2001 — 2001
Palos Verdes Peninsula High School 1996 — 2000
Sonia Zimmer's National Organization for Rare Disorders Experience January 2007 - August 2012
Job Paralegal at M.C. Law Group, LLC
Industry Legal Services
Experience
M.C. Law Group, LLC December 2014 - Present
Georgetown Financial Group August 2013 - August 2014
National Organization for Rare Disorders January 2007 - August 2012
FedeEx January 2004 - January 2006
Morici & Morici Law Office January 2003 - August 2003
James Noberini, Chiropractor January 2002 - January 2003
Fragomen, Del Rey, Bernsen & Loewy, LLP May 1998 - May 1999
Assadi, Rahmanan Marks May 1997 - May 1998
Law Office of Annamaria Lombino January 1994 - May 1997
Skills
Customer Service, Research, Microsoft Office, Microsoft Excel, Microsoft Word, Nonprofits, Event Management, Marketing, PowerPoint, Public Speaking, Spanish, Teaching, Legal Writing, Legal Research
Education
Naugatuck Valley Community College 2013 — 2015
Legal Assistant Paralegal, Paralegal
M.C. Law Group, LLC December 2014 - Present
Georgetown Financial Group August 2013 - August 2014
National Organization for Rare Disorders January 2007 - August 2012
FedeEx January 2004 - January 2006
Morici & Morici Law Office January 2003 - August 2003
James Noberini, Chiropractor January 2002 - January 2003
Fragomen, Del Rey, Bernsen & Loewy, LLP May 1998 - May 1999
Assadi, Rahmanan Marks May 1997 - May 1998
Law Office of Annamaria Lombino January 1994 - May 1997
Skills
Customer Service, Research, Microsoft Office, Microsoft Excel, Microsoft Word, Nonprofits, Event Management, Marketing, PowerPoint, Public Speaking, Spanish, Teaching, Legal Writing, Legal Research
Education
Naugatuck Valley Community College 2013 — 2015
Legal Assistant Paralegal, Paralegal
Jennifer Huron Jennifer Huron's National Organization for Rare Disorders Experience December 2014 - Present
Job Marketing & Communications
Industry Public Relations and Communications
Experience
National Organization for Rare Disorders December 2014 - Present
Mercy College April 2012 - December 2014
Susan Magrino Agency April 2011 - October 2011
Classic Media (now DreamWorks Animation) March 2010 - April 2011
Random House July 2007 - March 2010
Random House November 2006 - July 2007
Random House March 2005 - November 2006
Random House November 2003 - March 2005
Skills
Publicity, Public Relations, Media Relations, Press Releases, Content Development, Publishing, Content Strategy, Social Media Marketing, Editorial, Social Media, Editing, Event Planning, Creative Writing, Strategic Communications, Journalism, Copy Editing, Integrated Marketing, Media Pitching, Web Content, Strategic Planning, Brand Communication, Launch Of New Products, Website Development, Internal Communications, Writing and Editing, Content Creation, Entertainment, Strategic Partnerships, Television, Lifestyle, Writing, Corporate Communications, Product Launch, Branded Content, Branded Content...
Education
Haverford College
B.A., Psychology, Economics
New Fairfield High School
National Organization for Rare Disorders December 2014 - Present
Mercy College April 2012 - December 2014
Susan Magrino Agency April 2011 - October 2011
Classic Media (now DreamWorks Animation) March 2010 - April 2011
Random House July 2007 - March 2010
Random House November 2006 - July 2007
Random House March 2005 - November 2006
Random House November 2003 - March 2005
Skills
Publicity, Public Relations, Media Relations, Press Releases, Content Development, Publishing, Content Strategy, Social Media Marketing, Editorial, Social Media, Editing, Event Planning, Creative Writing, Strategic Communications, Journalism, Copy Editing, Integrated Marketing, Media Pitching, Web Content, Strategic Planning, Brand Communication, Launch Of New Products, Website Development, Internal Communications, Writing and Editing, Content Creation, Entertainment, Strategic Partnerships, Television, Lifestyle, Writing, Corporate Communications, Product Launch, Branded Content, Branded Content...
Education
Haverford College
B.A., Psychology, Economics
New Fairfield High School
Tai Spargo Tai Spargo's National Organization for Rare Disorders Experience January 2012 - August 2014
Job Teaching Associate at University of Massachusetts Amherst
Industry Health, Wellness and Fitness
Experience
University of Massachusetts Amherst September 2014 - Present
National Organization for Rare Disorders January 2012 - August 2014
National Organization for Rare Disorders February 2010 - January 2012
National Organization for Rare Disorders September 2009 - February 2010
US Department of Transportation (DOT) October 2008 - August 2009
Valley Council of Governments May 2008 - August 2008
The Umbrella May 2008 - August 2008
Tower Hamlets Education Business Partnership September 2007 - December 2007
Office of Congresswoman Rosa DeLauro CT-03 January 2007 - May 2007
FieldWorks August 2006 - December 2006
Skills
Nonprofits, Project Management, Public Speaking, Fundraising, Community Outreach, Grant Writing, Event Planning, Strategic Communications, Public Policy, Program Development, Public Relations, Research, Volunteer Management, Marketing Communications, Social Media Marketing, Policy Analysis, Community Development, Strategic Planning, Program Management, Websites, Databases, Blogging, Non-profits, Policy, Program Evaluation, Social Media
Education
University of Massachusetts, Amherst 2014 — 2018
Doctor of Philosophy (Ph.D.), Public Health/ Health Policy and Management
American University 2008 — 2009
Masters of Public Administration, Public Administration
American University 2004 — 2008
BA in Interdisciplinary Studies, Communications, Legal Institutions, Economics and Government
University of Massachusetts Amherst September 2014 - Present
National Organization for Rare Disorders January 2012 - August 2014
National Organization for Rare Disorders February 2010 - January 2012
National Organization for Rare Disorders September 2009 - February 2010
US Department of Transportation (DOT) October 2008 - August 2009
Valley Council of Governments May 2008 - August 2008
The Umbrella May 2008 - August 2008
Tower Hamlets Education Business Partnership September 2007 - December 2007
Office of Congresswoman Rosa DeLauro CT-03 January 2007 - May 2007
FieldWorks August 2006 - December 2006
Skills
Nonprofits, Project Management, Public Speaking, Fundraising, Community Outreach, Grant Writing, Event Planning, Strategic Communications, Public Policy, Program Development, Public Relations, Research, Volunteer Management, Marketing Communications, Social Media Marketing, Policy Analysis, Community Development, Strategic Planning, Program Management, Websites, Databases, Blogging, Non-profits, Policy, Program Evaluation, Social Media
Education
University of Massachusetts, Amherst 2014 — 2018
Doctor of Philosophy (Ph.D.), Public Health/ Health Policy and Management
American University 2008 — 2009
Masters of Public Administration, Public Administration
American University 2004 — 2008
BA in Interdisciplinary Studies, Communications, Legal Institutions, Economics and Government
Joi C. Ridley Joi C. Ridley's National Organization for Rare Disorders Experience June 2009 - June 2010
Job
Industry Public Policy
Experience
United Negro College Fund March 2013 - Present
The Young and Powerful Group - DC Chapter March 2012 - Present
NAACP - Washington D.C. Legislative Bureau January 2011 - March 2013
NAACP - National Headquarters October 2010 - March 2013
National Urban Fellows Inc. May 2009 - July 2010
National Organization for Rare Disorders June 2009 - June 2010
The Young and Powerful Group - DC Chapter September 2009 - May 2010
Obama for America May 2007 - November 2008
Compass Media Group - Tom Allen for Cook County State's Attorney August 2007 - February 2008
Allstate May 2007 - August 2007
Education
Baruch College, City University of New York (CUNY) 2009 — 2010
MPA
University of Wisconsin-Madison 2005 — 2008
JD
Chulalongkorn Mahawitthayalai 2007 — 2007
Honors Certificate in Cross-Cultural Negotiations
Howard University 2000 — 2003
B.A.
Whitney M. Young Magnet High School 1996 — 2000
Diploma
United Negro College Fund March 2013 - Present
The Young and Powerful Group - DC Chapter March 2012 - Present
NAACP - Washington D.C. Legislative Bureau January 2011 - March 2013
NAACP - National Headquarters October 2010 - March 2013
National Urban Fellows Inc. May 2009 - July 2010
National Organization for Rare Disorders June 2009 - June 2010
The Young and Powerful Group - DC Chapter September 2009 - May 2010
Obama for America May 2007 - November 2008
Compass Media Group - Tom Allen for Cook County State's Attorney August 2007 - February 2008
Allstate May 2007 - August 2007
Education
Baruch College, City University of New York (CUNY) 2009 — 2010
MPA
University of Wisconsin-Madison 2005 — 2008
JD
Chulalongkorn Mahawitthayalai 2007 — 2007
Honors Certificate in Cross-Cultural Negotiations
Howard University 2000 — 2003
B.A.
Whitney M. Young Magnet High School 1996 — 2000
Diploma
Chintan Ramaiya Chintan Ramaiya's National Organization for Rare Disorders Experience June 2012 - August 2012
Job Life Science Consultant at GlobalData
Industry Biotechnology
Experience
GlobalData January 2015 - Present
AlphaDetail July 2014 - November 2014
Zynx Health July 2013 - February 2014
Keck Graduate Institute September 2011 - July 2013
Questcor Pharmaceuticals August 2012 - May 2013
Keck Graduate Institute 2011 - 2013
National Organization for Rare Disorders June 2012 - August 2012
Children's Hospital Los Angeles CHLA October 2011 - December 2011
Keck Graduate Institute September 2011 - December 2011
Tutor Vista February 2010 - July 2010
Skills
Market Analysis, Lifesciences, Biotechnology, Biochemistry, Leadership, Market Research, Regulatory Affairs, Product Development, Marketing Strategy, Marketing Communications, Microsoft Excel, Due Diligence, Data Analysis, SPSS, Microsoft Office, Business Development, Manage Client..., Microsoft Office Suite, PowerPoint, Rare Diseases, Time Management, New Product Development, New Business Development, EHR, Electronic Medical..., Order Sets, Data Mapping, Salesf, Ad Hoc Reporting, Evidence-based Medicine, Cerner, Siemens Soarian, SharePoint, Epic, Life Sciences
Education
Keck Graduate Institute 2011 — 2013
Master's degree, Bioscience
Rajiv Gandhi University of Health Sciences 2005 — 2009
Bachelor of Pharmacy (B.Pharm.), Pharmacy
GlobalData January 2015 - Present
AlphaDetail July 2014 - November 2014
Zynx Health July 2013 - February 2014
Keck Graduate Institute September 2011 - July 2013
Questcor Pharmaceuticals August 2012 - May 2013
Keck Graduate Institute 2011 - 2013
National Organization for Rare Disorders June 2012 - August 2012
Children's Hospital Los Angeles CHLA October 2011 - December 2011
Keck Graduate Institute September 2011 - December 2011
Tutor Vista February 2010 - July 2010
Skills
Market Analysis, Lifesciences, Biotechnology, Biochemistry, Leadership, Market Research, Regulatory Affairs, Product Development, Marketing Strategy, Marketing Communications, Microsoft Excel, Due Diligence, Data Analysis, SPSS, Microsoft Office, Business Development, Manage Client..., Microsoft Office Suite, PowerPoint, Rare Diseases, Time Management, New Product Development, New Business Development, EHR, Electronic Medical..., Order Sets, Data Mapping, Salesf, Ad Hoc Reporting, Evidence-based Medicine, Cerner, Siemens Soarian, SharePoint, Epic, Life Sciences
Education
Keck Graduate Institute 2011 — 2013
Master's degree, Bioscience
Rajiv Gandhi University of Health Sciences 2005 — 2009
Bachelor of Pharmacy (B.Pharm.), Pharmacy
Kimberly Symonds Kimberly Symonds's National Organization for Rare Disorders Experience 1999 - 2009
Job Vice President at Symonds Group, Inc.
Industry Events Services
Experience
Symonds Group, Inc. February 2010 - Present
Wilson Disease Association December 2002 - February 2010
National Organization for Rare Disorders 1999 - 2009
Families of Spinal Muscular Atrophy May 1997 - November 2004
Muscular Dystrophy Association October 2001 - May 2002
Skills
Fundraising, Healthcare, Event Planning, Public Relations, New Business Development, Strategic Planning, Public Speaking, Operations Management, Marketing, Project Planning, Customer Service, Non-profits, Social Media, Lead Generation, Event Management, Start-ups, Team Building, Small Business, Leadership, Sales, Recruiting, Marketing Strategy, Sales Management, Strategy, Marketing Communications, Account Management, Advertising, Leadership Development, Contract Negotiation, Training, Time Management, Business Development, Nonprofits, Coaching, Business Strategy, Team Leadership, Organizational..., Entrepreneurship, Social Media Marketing, Management, Business Planning, Budgets, Social Networking, Negotiation, Human Resources, Email Marketing, Strategic Partnerships, CRM, B2B, Market Research
Education
Hiram College 1997 — 2002
Ashland University
Field High School
Symonds Group, Inc. February 2010 - Present
Wilson Disease Association December 2002 - February 2010
National Organization for Rare Disorders 1999 - 2009
Families of Spinal Muscular Atrophy May 1997 - November 2004
Muscular Dystrophy Association October 2001 - May 2002
Skills
Fundraising, Healthcare, Event Planning, Public Relations, New Business Development, Strategic Planning, Public Speaking, Operations Management, Marketing, Project Planning, Customer Service, Non-profits, Social Media, Lead Generation, Event Management, Start-ups, Team Building, Small Business, Leadership, Sales, Recruiting, Marketing Strategy, Sales Management, Strategy, Marketing Communications, Account Management, Advertising, Leadership Development, Contract Negotiation, Training, Time Management, Business Development, Nonprofits, Coaching, Business Strategy, Team Leadership, Organizational..., Entrepreneurship, Social Media Marketing, Management, Business Planning, Budgets, Social Networking, Negotiation, Human Resources, Email Marketing, Strategic Partnerships, CRM, B2B, Market Research
Education
Hiram College 1997 — 2002
Ashland University
Field High School
Nekeya George's National Organization for Rare Disorders Experience March 2015 - Present
Job Manager of Patient Services at the National Organization For Rare Disorders
Industry Nonprofit Organization Management
Experience
National Organization for Rare Disorders March 2015 - Present
National Organization for Rare Disorders February 2012 - March 2015
Connecticut African American Affairs Commission November 2011 - February 2012
Yankee Institute for Public Policy August 2011 - November 2011
University of North Texas June 2007 - August 2007
Skills
Program Evaluation, Healthcare, Microsoft Word, Microsoft Office, Policy, PowerPoint, Government, Organizational..., Leadership Development, Training, Nonprofits, Research, Community Outreach, Workshop Facilitation, Customer Service
Education
University of North Texas 2005 — 2009
Bachelor of Arts, Political Science
National Organization for Rare Disorders March 2015 - Present
National Organization for Rare Disorders February 2012 - March 2015
Connecticut African American Affairs Commission November 2011 - February 2012
Yankee Institute for Public Policy August 2011 - November 2011
University of North Texas June 2007 - August 2007
Skills
Program Evaluation, Healthcare, Microsoft Word, Microsoft Office, Policy, PowerPoint, Government, Organizational..., Leadership Development, Training, Nonprofits, Research, Community Outreach, Workshop Facilitation, Customer Service
Education
University of North Texas 2005 — 2009
Bachelor of Arts, Political Science
Lisa Phelps Lisa Phelps's National Organization for Rare Disorders Experience January 2015 - Present
Job Director of Marketing & Community Relations at National Organization for Rare Disorders
Industry Nonprofit Organization Management
Experience
National Organization for Rare Disorders January 2015 - Present
National Organization for Rare Disorders June 2013 - December 2014
HHS/ASPR/National Biodefense Science Board January 2013 - June 2013
National Organization for Rare Disorders (NORD) September 2011 - June 2013
Luboja & Thau, LLP July 2010 - August 2011
New York City Council February 2009 - June 2009
Skills
Branding, Marketing, Marketing Strategy, Marketing Communications, Social Media Marketing, Patient Advocacy, Policy, Strategic Planning, Policy Analysis, Project Management, Strategy, Grant Writing, Policy Writing, Epidemiology, Volunteer Management, Rare Diseases, Research, Legal Research Skills, Planning & Execution of..., Homeland Security, Public Speaking, Nonprofits, Stata Programming and..., Biodefense, Fundraising, Leadership
Education
The George Washington University 2011 — 2013
MPH, Health Policy
City University of New York-Baruch College 2008 — 2010
B.A., Political Science, with a dual minor of Law & Policy and Sociology.
National Organization for Rare Disorders January 2015 - Present
National Organization for Rare Disorders June 2013 - December 2014
HHS/ASPR/National Biodefense Science Board January 2013 - June 2013
National Organization for Rare Disorders (NORD) September 2011 - June 2013
Luboja & Thau, LLP July 2010 - August 2011
New York City Council February 2009 - June 2009
Skills
Branding, Marketing, Marketing Strategy, Marketing Communications, Social Media Marketing, Patient Advocacy, Policy, Strategic Planning, Policy Analysis, Project Management, Strategy, Grant Writing, Policy Writing, Epidemiology, Volunteer Management, Rare Diseases, Research, Legal Research Skills, Planning & Execution of..., Homeland Security, Public Speaking, Nonprofits, Stata Programming and..., Biodefense, Fundraising, Leadership
Education
The George Washington University 2011 — 2013
MPH, Health Policy
City University of New York-Baruch College 2008 — 2010
B.A., Political Science, with a dual minor of Law & Policy and Sociology.
Emily Fields's National Organization for Rare Disorders Experience December 2012 - February 2014
Job Executive Director at PRISMS Parents and Researchers Interested in SmithMagenis Syndrome
Industry Nonprofit Organization Management
Experience
PRISMS - Parents and Researchers Interested in Smith-Magenis Syndrome January 2015 - Present
Nourish International March 2014 - October 2014
National Organization for Rare Disorders December 2012 - February 2014
National Organization for Rare Disorders May 2012 - December 2012
Thrive DC January 2012 - May 2012
Life Pieces to Masterpieces August 2011 - May 2012
Center for Civic Engagement and Public Service GWU August 2010 - May 2012
Public Service Grant Commission 2010 - 2011
Skills
Fundraising, Grant Writing, Community Outreach, Social Media, Event Planning, Volunteer Management, Grant Review, Program Planning, Volunteer Training, Grassroots Advocacy, Community Service, Non-profit Experience, Public Relations, Social Networking, Marketing, Policy, Grants, Program Management, Microsoft Office
Education
The George Washington University 2009 — 2012
B.A. Human Services, 2013, Human Services with a Minor in Sociology and a Concentration in Multicultural Relations
PRISMS - Parents and Researchers Interested in Smith-Magenis Syndrome January 2015 - Present
Nourish International March 2014 - October 2014
National Organization for Rare Disorders December 2012 - February 2014
National Organization for Rare Disorders May 2012 - December 2012
Thrive DC January 2012 - May 2012
Life Pieces to Masterpieces August 2011 - May 2012
Center for Civic Engagement and Public Service GWU August 2010 - May 2012
Public Service Grant Commission 2010 - 2011
Skills
Fundraising, Grant Writing, Community Outreach, Social Media, Event Planning, Volunteer Management, Grant Review, Program Planning, Volunteer Training, Grassroots Advocacy, Community Service, Non-profit Experience, Public Relations, Social Networking, Marketing, Policy, Grants, Program Management, Microsoft Office
Education
The George Washington University 2009 — 2012
B.A. Human Services, 2013, Human Services with a Minor in Sociology and a Concentration in Multicultural Relations
Elina (Kiviniemi) Cordon Elina (Kiviniemi) Cordon's National Organization for Rare Disorders Experience November 2012 - November 2014
Job HR/Accounting Manager at Crowne Plaza Danbury
Industry Accounting
Experience
Crowne Plaza Danbury July 2015 - Present
National Organization for Rare Disorders November 2012 - November 2014
HEI Hotels & Resorts 2004 - 2009
Consultants & Engineers, Inc. 2000 - 2004
Brookfield Lanes, Inc. 1998 - 2000
Skills
Accounts Payable, Account Reconciliation, Accruals, QuickBooks, Accounting, Microsoft Word, Accounts Receivable, Bookkeeping, Microsoft Excel, Nonprofits, Spectrum, Invoicing, Microsoft Office, Fixed Assets, Internal Audit, Tax, Notary Public in the..., Sage Timberline Office, M3 Accounting, QuickBooks Pro, Standard Operating..., Personnel Training and..., Non-profits, ADP Payroll, Paychex, Sage MIP Accounting, Sage FR-50, Sage Report Writer, General Ledger, Benefit Cost Analysis, Cost Reporting, Information Technology, Healthcare Industry, Hospitality Finance, Entertainment Industry, Finance
Education
Western Connecticut State University 2013 — 2016
Master of Business Administration (M.B.A.)
Western Connecticut State University 2008 — 2012
Bachelor of Business Administration (B.B.A.), Accounting, Financial Option
Gibbs College 1999 — 1999
Certificate, Executive Assistant
Reisjärven Kr. Kansan Opisto, Finland, Europe 1997 — 1998
Diploma, International Student Program at Folk School;
Crowne Plaza Danbury July 2015 - Present
National Organization for Rare Disorders November 2012 - November 2014
HEI Hotels & Resorts 2004 - 2009
Consultants & Engineers, Inc. 2000 - 2004
Brookfield Lanes, Inc. 1998 - 2000
Skills
Accounts Payable, Account Reconciliation, Accruals, QuickBooks, Accounting, Microsoft Word, Accounts Receivable, Bookkeeping, Microsoft Excel, Nonprofits, Spectrum, Invoicing, Microsoft Office, Fixed Assets, Internal Audit, Tax, Notary Public in the..., Sage Timberline Office, M3 Accounting, QuickBooks Pro, Standard Operating..., Personnel Training and..., Non-profits, ADP Payroll, Paychex, Sage MIP Accounting, Sage FR-50, Sage Report Writer, General Ledger, Benefit Cost Analysis, Cost Reporting, Information Technology, Healthcare Industry, Hospitality Finance, Entertainment Industry, Finance
Education
Western Connecticut State University 2013 — 2016
Master of Business Administration (M.B.A.)
Western Connecticut State University 2008 — 2012
Bachelor of Business Administration (B.B.A.), Accounting, Financial Option
Gibbs College 1999 — 1999
Certificate, Executive Assistant
Reisjärven Kr. Kansan Opisto, Finland, Europe 1997 — 1998
Diploma, International Student Program at Folk School;
Laura Giordano's National Organization for Rare Disorders Experience 1991 - 2006
Job Process Administrator
Industry Medical Devices
Experience
Siemens Healthcare October 2014 - Present
Siemens Healthcare Diagnostics September 2014 - Present
Siemens Healthcare Diagnostics August 2011 - September 2014
Cartus June 2004 - June 2011
Greentree Toyota January 2007 - December 2007
National Organization for Rare Disorders 1991 - 2006
MannKind Corporation January 2002 - December 2003
Samuel Field/Bay Terrace YM&YWHA June 2001 - December 2001
Allentown Jewish Community Center June 2000 - June 2001
Skills
Leadership, Program Management, Management, Event Management, Budgets, Time Management, Data Entry, Team Building, Sales, Training, Customer Service, Negotiation, Strategic Planning, Microsoft Office, Recruiting, Outlook, Process Improvement, Cross-functional Team..., Operations Management, Public Speaking, Coaching, Event Planning, Administration, Fundraising, Account Management, Project Management, Community Outreach, Microsoft Excel, Data Analysis, Customer Satisfaction, PowerPoint, Team Leadership, Leadership Development, Supply Chain Management, Employee Training, Administrative..., Program Development, Staff Development, Nonprofits, Analysis, Research, Organizational..., Teaching, Teamwork, English, SAP
Education
Southern New Hampshire University 2015 — 2016
Master of Science (MS), Project Management
Fordham University 1999 — 2000
MSW, Social Work
Western Connecticut State University 1995 — 1999
BSW, Social Work
Siemens Healthcare October 2014 - Present
Siemens Healthcare Diagnostics September 2014 - Present
Siemens Healthcare Diagnostics August 2011 - September 2014
Cartus June 2004 - June 2011
Greentree Toyota January 2007 - December 2007
National Organization for Rare Disorders 1991 - 2006
MannKind Corporation January 2002 - December 2003
Samuel Field/Bay Terrace YM&YWHA June 2001 - December 2001
Allentown Jewish Community Center June 2000 - June 2001
Skills
Leadership, Program Management, Management, Event Management, Budgets, Time Management, Data Entry, Team Building, Sales, Training, Customer Service, Negotiation, Strategic Planning, Microsoft Office, Recruiting, Outlook, Process Improvement, Cross-functional Team..., Operations Management, Public Speaking, Coaching, Event Planning, Administration, Fundraising, Account Management, Project Management, Community Outreach, Microsoft Excel, Data Analysis, Customer Satisfaction, PowerPoint, Team Leadership, Leadership Development, Supply Chain Management, Employee Training, Administrative..., Program Development, Staff Development, Nonprofits, Analysis, Research, Organizational..., Teaching, Teamwork, English, SAP
Education
Southern New Hampshire University 2015 — 2016
Master of Science (MS), Project Management
Fordham University 1999 — 2000
MSW, Social Work
Western Connecticut State University 1995 — 1999
BSW, Social Work
Timothy Cote's National Organization for Rare Disorders Experience May 2011 - May 2012
Job Principal at Coté Orphan Consulting, LLC
Industry Pharmaceuticals
Experience
Coté Orphan Consulting, LLC March 2012 - Present
Keck Graduate Institute May 2011 - July 2014
National Organization for Rare Disorders May 2011 - May 2012
FDA September 2007 - May 2011
Centers for Disease Control and Prevention March 2006 - September 2007
Centers for Disease Control and Prevention July 2004 - March 2006
FDA February 2002 - August 2004
National Cancer Institute September 1999 - February 2002
USDA September 1998 - September 1999
NIH June 1995 - August 1998
Skills
Cancer, Epidemiology, FDA, Public Health, Infectious Diseases, Orphan drugs
Education
Howard University College of Medicine 1982 — 1987
MD, Medicine
Harvard T.H. Chan School of Public Health 1984 — 1985
MPH, Tropical Public Health
Coté Orphan Consulting, LLC March 2012 - Present
Keck Graduate Institute May 2011 - July 2014
National Organization for Rare Disorders May 2011 - May 2012
FDA September 2007 - May 2011
Centers for Disease Control and Prevention March 2006 - September 2007
Centers for Disease Control and Prevention July 2004 - March 2006
FDA February 2002 - August 2004
National Cancer Institute September 1999 - February 2002
USDA September 1998 - September 1999
NIH June 1995 - August 1998
Skills
Cancer, Epidemiology, FDA, Public Health, Infectious Diseases, Orphan drugs
Education
Howard University College of Medicine 1982 — 1987
MD, Medicine
Harvard T.H. Chan School of Public Health 1984 — 1985
MPH, Tropical Public Health
Jacqueline DaSilva's National Organization for Rare Disorders Experience November 2014 - Present
Job Finance Accountant at NORD
Industry Accounting
Experience
National Organization for Rare Disorders November 2014 - Present
CohnReznick LLP July 2014 - November 2014
Ercolini & Company LLP January 2013 - July 2014
DaSilva Landscaping January 2006 - January 2013
Sharkansky LLP May 2012 - December 2012
IPC Global Solutions October 2011 - May 2012
ADDITIONALBrockton Hospital November 2006 - October 2007
TBCAM January 2005 - August 2005
Kmart Corporation November 1997 - April 2002
Skills
Syspro, Microsoft Office, Quickbooks, Accounts Payable, Accounts Receivable, Journal Entries, Customer Service, Data Entry, Bank Reconciliation, Teamwork, Account Reconciliation, Bookkeeping, Financial Reporting, QuickBooks
Education
Bridgewater State University 2010 — 2012
Accounting
Massasoit Community College 2008 — 2010
Associate of Science, Business Administration
Suffolk University
Coursework, Criminology and Law
National Organization for Rare Disorders November 2014 - Present
CohnReznick LLP July 2014 - November 2014
Ercolini & Company LLP January 2013 - July 2014
DaSilva Landscaping January 2006 - January 2013
Sharkansky LLP May 2012 - December 2012
IPC Global Solutions October 2011 - May 2012
ADDITIONALBrockton Hospital November 2006 - October 2007
TBCAM January 2005 - August 2005
Kmart Corporation November 1997 - April 2002
Skills
Syspro, Microsoft Office, Quickbooks, Accounts Payable, Accounts Receivable, Journal Entries, Customer Service, Data Entry, Bank Reconciliation, Teamwork, Account Reconciliation, Bookkeeping, Financial Reporting, QuickBooks
Education
Bridgewater State University 2010 — 2012
Accounting
Massasoit Community College 2008 — 2010
Associate of Science, Business Administration
Suffolk University
Coursework, Criminology and Law
Heidi Weber Heidi Weber's National Organization for Rare Disorders Experience April 2009 - January 2010
Job Consultant, Grant Writing and Prospect Research
Industry Philanthropy
Experience
Bruce Museum January 2011 - March 2013
National Organization for Rare Disorders April 2009 - January 2010
Planned Parenthood Federation of America, Inc. 2000 - 2009
Methodist Home for Children 1999 - 2000
Philanthropy Journal 1999 - 1999
New York Public Library 1986 - 1988
Skills
Planned Giving, Grant Writing, Fundraising, Philanthropy, Proposal Writing, Museums, Grants, Prospect Research, Stewardship, Solicitation, Research
Education
Dartmouth College 1975 — 1979
Bachelor of Arts, Philosophy
Northfield Mt. Hermon School 1973 — 1975
Diploma
Bruce Museum January 2011 - March 2013
National Organization for Rare Disorders April 2009 - January 2010
Planned Parenthood Federation of America, Inc. 2000 - 2009
Methodist Home for Children 1999 - 2000
Philanthropy Journal 1999 - 1999
New York Public Library 1986 - 1988
Skills
Planned Giving, Grant Writing, Fundraising, Philanthropy, Proposal Writing, Museums, Grants, Prospect Research, Stewardship, Solicitation, Research
Education
Dartmouth College 1975 — 1979
Bachelor of Arts, Philosophy
Northfield Mt. Hermon School 1973 — 1975
Diploma
Lauren Rosato Lauren Rosato's National Organization for Rare Disorders Experience July 2014 - Present
Job Interim Executive Director, LPL Deficiency Association
Industry Nonprofit Organization Management
Experience
National Organization for Rare Disorders July 2014 - Present
LPL Deficiency Association September 2014 - Present
International Institute of Connecticut, www.iiconn.org May 2013 - June 2014
Connecticut Business Systems July 2012 - May 2013
Norwalk Education Foundation November 2006 - July 2012
A Leg To Stand On March 2005 - October 2006
AmeriCares May 2001 - March 2005
Lexpress International, Inc. October 1990 - September 2003
Lexitech International Documentation, Inc. May 1989 - September 1990
Skills
Non-profit Leadership, Non-profits, Staff Development, Fundraising, Grant Writing, Program Development, Media Relations, Public Speaking, Event Planning, Organizational..., Strategic Planning, Public Relations, Community Outreach, Event Management, Program Management, Project Management, Nonprofits, Marketing Strategy, Business Development, Leadership, Leadership Development, Marketing, Entrepreneurship, B2B, Change Management, Sales, Social Networking, Social Media, Marketing Communications, Community Development, Analysis, Management, Coaching, Strategy, New Business Development, Training, Account Management
Education
The University of Connecticut School of Business
Bachelor of Science, Finance, French
Thunderbird School of Global Management
Master International Management, Marketing
National Organization for Rare Disorders July 2014 - Present
LPL Deficiency Association September 2014 - Present
International Institute of Connecticut, www.iiconn.org May 2013 - June 2014
Connecticut Business Systems July 2012 - May 2013
Norwalk Education Foundation November 2006 - July 2012
A Leg To Stand On March 2005 - October 2006
AmeriCares May 2001 - March 2005
Lexpress International, Inc. October 1990 - September 2003
Lexitech International Documentation, Inc. May 1989 - September 1990
Skills
Non-profit Leadership, Non-profits, Staff Development, Fundraising, Grant Writing, Program Development, Media Relations, Public Speaking, Event Planning, Organizational..., Strategic Planning, Public Relations, Community Outreach, Event Management, Program Management, Project Management, Nonprofits, Marketing Strategy, Business Development, Leadership, Leadership Development, Marketing, Entrepreneurship, B2B, Change Management, Sales, Social Networking, Social Media, Marketing Communications, Community Development, Analysis, Management, Coaching, Strategy, New Business Development, Training, Account Management
Education
The University of Connecticut School of Business
Bachelor of Science, Finance, French
Thunderbird School of Global Management
Master International Management, Marketing
Nancy Carniglia, MPH's National Organization for Rare Disorders Experience May 2012 - December 2012
Job CME Writing Consultant at Boston University School of Medicine
Industry Hospital & Health Care
Experience
Boston University School of Medicine, Continuing Medical Education January 2014 - January 2015
Massachusetts General Hospital June 2014 - October 2014
Casting for Recovery, inc. December 2013 - July 2014
American Thoracic Society February 2010 - March 2014
Boston Chldren's Hospital, Paul Farmer Global Surgery and Social Change Program July 2013 - January 2014
National Organization for Rare Disorders May 2012 - December 2012
MHPI, Inc. February 2009 - January 2011
Skin Cancer Foundation October 2007 - February 2008
Institute of Health and Recovery June 2006 - March 2007
Boston University January 2006 - June 2006
Skills
Grant Writing, Research, Medical Writing, CME, Needs assessments, Literature searches., Public Health, Non-profits, Strategic Planning, Clinical Research, Leadership, Analysis, Marketing, Program Management, Program Evaluation, Grants, Program Development, Nonprofits
Education
Yale University
M.P.H., Epidemiology and Public Health
Connecticut College
B.A., Economics
Boston University School of Medicine, Continuing Medical Education January 2014 - January 2015
Massachusetts General Hospital June 2014 - October 2014
Casting for Recovery, inc. December 2013 - July 2014
American Thoracic Society February 2010 - March 2014
Boston Chldren's Hospital, Paul Farmer Global Surgery and Social Change Program July 2013 - January 2014
National Organization for Rare Disorders May 2012 - December 2012
MHPI, Inc. February 2009 - January 2011
Skin Cancer Foundation October 2007 - February 2008
Institute of Health and Recovery June 2006 - March 2007
Boston University January 2006 - June 2006
Skills
Grant Writing, Research, Medical Writing, CME, Needs assessments, Literature searches., Public Health, Non-profits, Strategic Planning, Clinical Research, Leadership, Analysis, Marketing, Program Management, Program Evaluation, Grants, Program Development, Nonprofits
Education
Yale University
M.P.H., Epidemiology and Public Health
Connecticut College
B.A., Economics
Kisa Carter's National Organization for Rare Disorders Experience September 2006 - June 2007
Job Federal Assistance (Grants) PolicyDepartment of Health and Human Services
Industry Public Policy
Experience
US Department of Health and Human Services January 2015 - Present
TEAM Strategic Solutions December 2010 - Present
U.S. Department of Labor September 2012 - January 2015
Hemophilia Foundation of Maryland January 2011 - December 2012
America Works August 2011 - August 2012
Interages MD 2009 - 2011
Hemophilia Federation of America January 2008 - November 2010
Kelly Healthcare Resources January 2008 - November 2010
National Organization for Rare Disorders September 2006 - June 2007
Department of Veterans Affairs February 2004 - May 2006
Skills
Public Policy, Employment Services, Communications Strategy, Community Outreach, Strategic Communications, Employment, Policy, Strategy, Policy Analysis, Fundraising, Public Administration, Strategic Planning, Non-profit..., Workforce Development, Nonprofits, Public Speaking, Leadership, Public Relations, Training, Grants, Grant Writing, Leadership Development, Speech Writing, Political Campaigns, Non-profits, Program Development, Program Evaluation, Economic Development, Grassroots Organizing, Community Organizing, Philanthropy, Employee Training, Volunteer Management, Research, Government, Community Development, Legislative Relations, Event Planning, Legislation, Workshop Facilitation, Management, Healthcare, Public Affairs, Coalitions, Qualitative Research, Media Relations, Proposal Writing, Politics, Analysis
Education
The Regulatory Group, Inc. 2015 — 2015
Certificate, Federal Agency Guidance
Management Concepts Inc. (Washington DC) 2013 — 2014
Grants Management Certificate
City University of New York-Baruch College 2006 — 2007
Masters, Public Administration
US Department of Health and Human Services January 2015 - Present
TEAM Strategic Solutions December 2010 - Present
U.S. Department of Labor September 2012 - January 2015
Hemophilia Foundation of Maryland January 2011 - December 2012
America Works August 2011 - August 2012
Interages MD 2009 - 2011
Hemophilia Federation of America January 2008 - November 2010
Kelly Healthcare Resources January 2008 - November 2010
National Organization for Rare Disorders September 2006 - June 2007
Department of Veterans Affairs February 2004 - May 2006
Skills
Public Policy, Employment Services, Communications Strategy, Community Outreach, Strategic Communications, Employment, Policy, Strategy, Policy Analysis, Fundraising, Public Administration, Strategic Planning, Non-profit..., Workforce Development, Nonprofits, Public Speaking, Leadership, Public Relations, Training, Grants, Grant Writing, Leadership Development, Speech Writing, Political Campaigns, Non-profits, Program Development, Program Evaluation, Economic Development, Grassroots Organizing, Community Organizing, Philanthropy, Employee Training, Volunteer Management, Research, Government, Community Development, Legislative Relations, Event Planning, Legislation, Workshop Facilitation, Management, Healthcare, Public Affairs, Coalitions, Qualitative Research, Media Relations, Proposal Writing, Politics, Analysis
Education
The Regulatory Group, Inc. 2015 — 2015
Certificate, Federal Agency Guidance
Management Concepts Inc. (Washington DC) 2013 — 2014
Grants Management Certificate
City University of New York-Baruch College 2006 — 2007
Masters, Public Administration
Eileen Anderson's National Organization for Rare Disorders Experience July 2012 - January 2013
Job Marketing Research Professional
Industry Market Research
Experience
National Organization for Rare Disorders July 2012 - January 2013
Ipsos ASI October 2007 - May 2012
GfK Custom Research North America September 2006 - September 2007
Directive Analytics September 2005 - September 2006
TNS 1997 - 2005
The Gallup Organization September 1995 - September 1997
Mannington Mills, Inc. June 1994 - September 1995
McGraw-Hill Construction June 1984 - August 1992
Skills
Quantitative Research, Segmentation, Questionnaire Design, Customer Insight, Advertising Research, Project Management, Brand Equity
Education
Smith College 1980 — 1984
BA, Economics
The Ohio State University 1992 — 1994
MA, Economic Geography
National Organization for Rare Disorders July 2012 - January 2013
Ipsos ASI October 2007 - May 2012
GfK Custom Research North America September 2006 - September 2007
Directive Analytics September 2005 - September 2006
TNS 1997 - 2005
The Gallup Organization September 1995 - September 1997
Mannington Mills, Inc. June 1994 - September 1995
McGraw-Hill Construction June 1984 - August 1992
Skills
Quantitative Research, Segmentation, Questionnaire Design, Customer Insight, Advertising Research, Project Management, Brand Equity
Education
Smith College 1980 — 1984
BA, Economics
The Ohio State University 1992 — 1994
MA, Economic Geography
Leleah Robinson's National Organization for Rare Disorders Experience September 2013 - May 2014
Job Grants Manager at Kings County District Attorneys Office
Industry Public Policy
Experience
Kings County District Attorneys Office October 2014 - Present
National Urban Fellows May 2013 - July 2014
National Organization for Rare Disorders September 2013 - May 2014
Flashpoint Medica February 2012 - May 2013
Flashpoint Medica October 2009 - February 2012
Morris Visitor Publications September 2007 - October 2009
Skills
Advertising, Research, Leadership Development, Nonprofits, Public Policy, Volunteer Management, Legislative Relations, Training, Event Planning, Management, Policy, Grant Writing, Program Management, Strategic Planning
Education
City University of New York-Baruch College 2013 — 2014
Master of Public Administration (MPA), Public Administration
The University of Georgia 2003 — 2007
Publication Management, Journalism
Kings County District Attorneys Office October 2014 - Present
National Urban Fellows May 2013 - July 2014
National Organization for Rare Disorders September 2013 - May 2014
Flashpoint Medica February 2012 - May 2013
Flashpoint Medica October 2009 - February 2012
Morris Visitor Publications September 2007 - October 2009
Skills
Advertising, Research, Leadership Development, Nonprofits, Public Policy, Volunteer Management, Legislative Relations, Training, Event Planning, Management, Policy, Grant Writing, Program Management, Strategic Planning
Education
City University of New York-Baruch College 2013 — 2014
Master of Public Administration (MPA), Public Administration
The University of Georgia 2003 — 2007
Publication Management, Journalism
Norine McArdle's National Organization for Rare Disorders Experience December 2013 - Present
Job Human Resources Director at National Organization for Rare Disorders
Industry Nonprofit Organization Management
Experience
National Organization for Rare Disorders December 2013 - Present
Institute of International Education April 2008 - December 2013
Comprehensive NeuroScience June 2002 - April 2007
Education
Manhattanville College 2006 — 2008
M.S., Human Resources
Purchase College, SUNY 1994 — 1999
B.A., Political Science
National Organization for Rare Disorders December 2013 - Present
Institute of International Education April 2008 - December 2013
Comprehensive NeuroScience June 2002 - April 2007
Education
Manhattanville College 2006 — 2008
M.S., Human Resources
Purchase College, SUNY 1994 — 1999
B.A., Political Science
Vincent Tsugranes's National Organization for Rare Disorders Experience March 2014 - Present
Job Director of Information Technology at National Organization for Rare Disorders
Industry Hospital & Health Care
Experience
National Organization for Rare Disorders March 2014 - Present
Atlas Air February 2011 - March 2014
Atlas Air January 2010 - July 2011
Atlas Air November 2003 - January 2010
Skills
Process Improvement, Airlines, SDLC, Enterprise Architecture, Vendor Management, Aviation, Program Management, Databases, Airports, Operations Management, Enterprise Software, Business Analysis, Software Development, Visio, IT Management, Business Process, Information Technology, Management, Integration, IT Strategy, Disaster Recovery, Strategic Planning, Business Intelligence
Education
Harvard University 2012 — 2014
Master's degree, Management
Western Connecticut State University 2002 — 2006
BS, MIS
University of Connecticut 2000 — 2002
Molecular Cell Biology
National Organization for Rare Disorders March 2014 - Present
Atlas Air February 2011 - March 2014
Atlas Air January 2010 - July 2011
Atlas Air November 2003 - January 2010
Skills
Process Improvement, Airlines, SDLC, Enterprise Architecture, Vendor Management, Aviation, Program Management, Databases, Airports, Operations Management, Enterprise Software, Business Analysis, Software Development, Visio, IT Management, Business Process, Information Technology, Management, Integration, IT Strategy, Disaster Recovery, Strategic Planning, Business Intelligence
Education
Harvard University 2012 — 2014
Master's degree, Management
Western Connecticut State University 2002 — 2006
BS, MIS
University of Connecticut 2000 — 2002
Molecular Cell Biology
Carlota Grate's National Organization for Rare Disorders Experience May 2012 - November 2012
Job CPA/Chief Financial Officer
Industry Nonprofit Organization Management
Experience
Arrow Pharmacy Holdings, LLC November 2012 - March 2013
National Organization for Rare Disorders May 2012 - November 2012
Wheeler Clinic December 2008 - February 2012
UPS Capital Business Credit June 2007 - October 2008
Southern Connecticut Bancorp November 2005 - April 2007
Aetna 2002 - 2005
YMCA of Greater Hartford 2001 - 2002
YMCA of Metropolitan Hartford 2001 - 2002
ING 2000 - 2001
Aetna International Inc. 1997 - 2001
Skills
Accounting, Strategic Planning, Executive Management, Insurance, Managerial Finance, Risk Management, Financial Risk, Budgets, CPA, Internal Controls, Financial Technology, Non-profit Finance, Financial Reporting, Auditing, Nonprofits, Financial Services, Management, QuickBooks, Banking, Analysis, Forecasting, Financial Modeling, Recruiting, Hyperion Enterprise, Strategic Financial..., Cash Management, Mergers & Acquisitions, Sarbanes-Oxley Act, GAAP, Cash Flow, SEC filings
Education
City University of New York-Baruch College - Zicklin School of Business 1971 — 1975
BBA, Public Accounting
Arrow Pharmacy Holdings, LLC November 2012 - March 2013
National Organization for Rare Disorders May 2012 - November 2012
Wheeler Clinic December 2008 - February 2012
UPS Capital Business Credit June 2007 - October 2008
Southern Connecticut Bancorp November 2005 - April 2007
Aetna 2002 - 2005
YMCA of Greater Hartford 2001 - 2002
YMCA of Metropolitan Hartford 2001 - 2002
ING 2000 - 2001
Aetna International Inc. 1997 - 2001
Skills
Accounting, Strategic Planning, Executive Management, Insurance, Managerial Finance, Risk Management, Financial Risk, Budgets, CPA, Internal Controls, Financial Technology, Non-profit Finance, Financial Reporting, Auditing, Nonprofits, Financial Services, Management, QuickBooks, Banking, Analysis, Forecasting, Financial Modeling, Recruiting, Hyperion Enterprise, Strategic Financial..., Cash Management, Mergers & Acquisitions, Sarbanes-Oxley Act, GAAP, Cash Flow, SEC filings
Education
City University of New York-Baruch College - Zicklin School of Business 1971 — 1975
BBA, Public Accounting
Natalie Abbott's National Organization for Rare Disorders Experience September 2011 - December 2011
Job Public Library Services and Nonprofit Social Media
Industry Libraries
Experience
Contra Costa County August 2014 - Present
ABC-CLIO August 2012 - Present
APS Type 1 Foundation February 2013 - Present
Fremont Public Library March 2014 - August 2014
Infotrieve October 2012 - June 2013
Hope Partnership for Education December 2011 - July 2012
Neal-Schuman January 2011 - January 2012
National Organization for Rare Disorders September 2011 - December 2011
University of California, Berkeley August 2009 - December 2009
University of San Francisco May 2009 - August 2009
Skills
Research, Social Media, Non-profits, Library, Event Planning, Writing, Grant Writing, Graphic Design, Photoshop, Newsletters, Nonprofits, Proofreading, Publications, Facebook, Library Science, Publishing, Editorial, Information Literacy, Editing, Blogging, Copy Editing, Community Outreach, Copywriting, Fundraising, Cataloging, Social Networking, Market Research, Library Research, Volunteer Management, Public Speaking, Online Research, Program Development, Public Relations, Collection Development, Social Media Marketing, Event Management, PowerPoint, Books, Grants, Library Instruction, Marketing Communications, Microsoft Office, Newspapers, Literature, Higher Education, Digital Libraries, Digitization
Education
University of California, Berkeley 2006 — 2009
MA, English
San Jose State University 2008 — 2009
MLIS, Library and Information Science
Bryn Mawr College 2001 — 2005
AB, English, Psychology, Creative Writing
Contra Costa County August 2014 - Present
ABC-CLIO August 2012 - Present
APS Type 1 Foundation February 2013 - Present
Fremont Public Library March 2014 - August 2014
Infotrieve October 2012 - June 2013
Hope Partnership for Education December 2011 - July 2012
Neal-Schuman January 2011 - January 2012
National Organization for Rare Disorders September 2011 - December 2011
University of California, Berkeley August 2009 - December 2009
University of San Francisco May 2009 - August 2009
Skills
Research, Social Media, Non-profits, Library, Event Planning, Writing, Grant Writing, Graphic Design, Photoshop, Newsletters, Nonprofits, Proofreading, Publications, Facebook, Library Science, Publishing, Editorial, Information Literacy, Editing, Blogging, Copy Editing, Community Outreach, Copywriting, Fundraising, Cataloging, Social Networking, Market Research, Library Research, Volunteer Management, Public Speaking, Online Research, Program Development, Public Relations, Collection Development, Social Media Marketing, Event Management, PowerPoint, Books, Grants, Library Instruction, Marketing Communications, Microsoft Office, Newspapers, Literature, Higher Education, Digital Libraries, Digitization
Education
University of California, Berkeley 2006 — 2009
MA, English
San Jose State University 2008 — 2009
MLIS, Library and Information Science
Bryn Mawr College 2001 — 2005
AB, English, Psychology, Creative Writing
Rosemary Riepe's National Organization for Rare Disorders Experience December 2001 - Present
Job HR Director at National Organization for Rare Disorders
Industry Health, Wellness and Fitness
Experience
National Organization for Rare Disorders December 2001 - Present
Education
Marymount Manhattan College 1965 — 1969
BA, Sociology
National Organization for Rare Disorders December 2001 - Present
Education
Marymount Manhattan College 1965 — 1969
BA, Sociology
Susan Olivo's National Organization for Rare Disorders Experience 2000 - Present
Job Membership Manager
Industry Nonprofit Organization Management
Experience
National Organization for Rare Disorders 2000 - Present
First Brands (STP/Johnny Cat) March 1995 - April 1999
Skills
Fundraising, Volunteer Management, Non-profits, Community Outreach, Grant Writing, Program Development, Public Speaking, Marketing Communications, Meeting Planning, Microsoft Word, Customer Service, Business Meetings, Cus, Event Planning, Nonprofits, Public Relations, Philanthropy, Community Development
Education
Fordham University 1972 — 1973
National Organization for Rare Disorders 2000 - Present
First Brands (STP/Johnny Cat) March 1995 - April 1999
Skills
Fundraising, Volunteer Management, Non-profits, Community Outreach, Grant Writing, Program Development, Public Speaking, Marketing Communications, Meeting Planning, Microsoft Word, Customer Service, Business Meetings, Cus, Event Planning, Nonprofits, Public Relations, Philanthropy, Community Development
Education
Fordham University 1972 — 1973
Lynn Bahnken's National Organization for Rare Disorders Experience November 2012 - June 2013
Job Director of Finance & Administration
Industry Nonprofit Organization Management
Experience
National Organization for Rare Disorders November 2012 - June 2013
Friends of Karen September 2006 - July 2011
Antares Investment Partners 2005 - 2006
Unisys Corporation 1976 - 1989
Education
Adelphi University 1983 — 1986
MBA, Accounting
National Organization for Rare Disorders November 2012 - June 2013
Friends of Karen September 2006 - July 2011
Antares Investment Partners 2005 - 2006
Unisys Corporation 1976 - 1989
Education
Adelphi University 1983 — 1986
MBA, Accounting
Jason Barron's National Organization for Rare Disorders Experience September 2013 - March 2014
Job Manager, Health Policy and Alliances at Sarepta Therapeutics
Industry Biotechnology
Experience
Sarepta Therapeutics April 2014 - Present
National Organization for Rare Disorders September 2013 - March 2014
National Organization for Rare Disorders March 2013 - March 2014
National Organization for Rare Disorders July 2010 - March 2013
Skills
Public Policy, Nonprofits, Program Evaluation, Healthcare Information..., Grant Writing, Policy Analysis, Policy, Health Policy, Program Development, Research, Community Outreach
Education
Dartmouth College 2006 — 2010
Bachelor of Arts (BA), Chemistry
Sarepta Therapeutics April 2014 - Present
National Organization for Rare Disorders September 2013 - March 2014
National Organization for Rare Disorders March 2013 - March 2014
National Organization for Rare Disorders July 2010 - March 2013
Skills
Public Policy, Nonprofits, Program Evaluation, Healthcare Information..., Grant Writing, Policy Analysis, Policy, Health Policy, Program Development, Research, Community Outreach
Education
Dartmouth College 2006 — 2010
Bachelor of Arts (BA), Chemistry
Alexandra Freitas's National Organization for Rare Disorders Experience November 2014 - Present
Job Membership Manager at National Organization for Rare Disorders
Industry Marketing and Advertising
Experience
National Organization for Rare Disorders November 2014 - Present
Skills
Social Media Marketing, Nonprofits, Marketing, Social Media, Non-profits, Strategic Communications, Leadership, Marketing Communications, Program Management, Community Outreach, Grant Writing, Volunteer Management, Email Marketing, Community Sites, Event Planning, Fundraising, Public Speaking, Customer Satisfaction, Patient Advocacy, Marketing Strategy, Public Relations, Marketing Management, Facebook, Social Networking, Philanthropy, Non-profit..., Community Development, Customer Service, PowerPoint, Non-profit Marketing, Rare Diseases, Patient Recruitment, Relocation, Salesforce.com, Database Management, Gimp, sales, Online Communities, Constant Contact, ReadyTalk, lead retrieval, Exhibition Management, Trade Shows, Mail Chimp, Product Demonstration, International Marketing, Program Facilitation, Program Development, Sales, Time Management
Education
Western Connecticut State University 2008 — 2011
BBA Marketing, Business
The University of Connecticut School of Business 2007 — 2008
Marketing, Business
National Organization for Rare Disorders November 2014 - Present
Skills
Social Media Marketing, Nonprofits, Marketing, Social Media, Non-profits, Strategic Communications, Leadership, Marketing Communications, Program Management, Community Outreach, Grant Writing, Volunteer Management, Email Marketing, Community Sites, Event Planning, Fundraising, Public Speaking, Customer Satisfaction, Patient Advocacy, Marketing Strategy, Public Relations, Marketing Management, Facebook, Social Networking, Philanthropy, Non-profit..., Community Development, Customer Service, PowerPoint, Non-profit Marketing, Rare Diseases, Patient Recruitment, Relocation, Salesforce.com, Database Management, Gimp, sales, Online Communities, Constant Contact, ReadyTalk, lead retrieval, Exhibition Management, Trade Shows, Mail Chimp, Product Demonstration, International Marketing, Program Facilitation, Program Development, Sales, Time Management
Education
Western Connecticut State University 2008 — 2011
BBA Marketing, Business
The University of Connecticut School of Business 2007 — 2008
Marketing, Business
Patricia Kane-Carlsen's National Organization for Rare Disorders Experience September 2003 - June 2005
Job Nurse Practitioner, Nursing Education, Hospital & Health Care Professional
Industry Hospital & Health Care
Experience
Almost Family - Patient Care 2013 - Present
National Organization for Rare Disorders September 2003 - June 2005
Carolina Rehabilitation Associates January 1993 - April 1995
Texas Woman's University September 1991 - May 1993
Federal Bureau of Prisons December 1989 - January 1991
Rochester Community and Technical College September 1989 - December 1990
U.S. Department of Veterans Affairs October 1987 - September 1988
Skills
Nurse Practitioners, Registered Nurses, Direct Patient Care, Quality Patient Care, Patient Satisfaction, Healthcare, Patient Education, Health Education, Chronic Illness, Assessment, Nursing Education, Communication, Leadership, Hypertension, Diabetes
Education
University of Pennsylvania 1986 — 1987
Master's Degree, Adult Nurse Practitioner
Georgetown University 1980 — 1984
Bachelor's Degree, Registered Nursing/Registered Nurse
Almost Family - Patient Care 2013 - Present
National Organization for Rare Disorders September 2003 - June 2005
Carolina Rehabilitation Associates January 1993 - April 1995
Texas Woman's University September 1991 - May 1993
Federal Bureau of Prisons December 1989 - January 1991
Rochester Community and Technical College September 1989 - December 1990
U.S. Department of Veterans Affairs October 1987 - September 1988
Skills
Nurse Practitioners, Registered Nurses, Direct Patient Care, Quality Patient Care, Patient Satisfaction, Healthcare, Patient Education, Health Education, Chronic Illness, Assessment, Nursing Education, Communication, Leadership, Hypertension, Diabetes
Education
University of Pennsylvania 1986 — 1987
Master's Degree, Adult Nurse Practitioner
Georgetown University 1980 — 1984
Bachelor's Degree, Registered Nursing/Registered Nurse
American Heart Association
Big Brothers Big Sisters
National MS Society
Cystic Fibrosis Foundation
Sesame Workshop
Harlem Children's Zone
Fund for the Public Interest
Susan G. Komen for the Cure